The History of Patient-Reported Outcomes in Rheumatology

Abstract

The rheumatology community began incorporating patient-reported outcomes in the early 1980s, helping shift the care of chronic diseases from a narrower biomedical model to a broader biopsychosocial model of health. Early efforts were focused primarily in clinical trials and clinical research, but over the last decade there has been increasing use in routine rheumatology clinical care. More than 250 valid and reliable scales to assess domains of importance to patients with rheumatic conditions have been developed. The approach to measurement continues to be refined. Rheumatology has much to be proud of in contributions to the important field of patient-reported outcomes.

Keywords: Arthritis Impact Measurement Scales; Health Assessment Questionnaire; Health status assessment; Patient-reported outcomes; Rheumatic diseases; Rheumatology; Self-report measures.