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Observational Study
. 2016 Aug 22;10(5):1034-41.
doi: 10.1177/1932296816645121. Print 2016 Sep.

Registry of Youth Onset Diabetes in India (YDR): Rationale, Recruitment, and Current Status

Pradeep A Praveen  1 , Sri Venkata Madhu  2 , Viswanathan Mohan  3 , Siddhartha Das  4 , Sanjeeb Kakati  5 , Nalini Shah  6 , Manoj Chaddha  7 , Sanjay Kumar Bhadada  8 , Ashok Kumar Das  9 , Deepak Kumar Shukla  10 , Tanvir Kaur  10 , Nikhil Tandon  11
Affiliations
Observational Study

Registry of Youth Onset Diabetes in India (YDR): Rationale, Recruitment, and Current Status

Pradeep A Praveen et al. J Diabetes Sci Technol. .

Abstract

Background: With the aim of addressing the relative scarcity of information on youth-onset diabetes in India, the Indian Council of Medical Research (ICMR) decided to establish the Registry of People with Diabetes with Young Age at Onset (YDR) in 2006. The major objectives of YDR are to generate information on disease pattern or types of youth-onset diabetes including their geographical variations within India and to estimate the burden of diabetes complications.

Methods: YDR is an observational multicenter clinic based registry enlisting physician diagnosed diabetes in individuals below 25 years of age. Diabetes was classified using symptom based clinical criteria. YDR data collection is coordinated through regional collaborating centers and their interacting reporting centers across India. A baseline and an annual follow-up proformas are used to obtain information on sociodemographic details, clinical profile, and anthropometric and laboratory measurements of the patients.

Results: In phase 1, the registry has enrolled 5546 patients, in which type 1 diabetes mellitus (T1DM) was the most prevalent (63.9%), followed by youth-onset type 2 diabetes mellitus (T2DM) (25.3%).

Conclusion: This registry provides a unique opportunity to study the natural history of youth-onset diabetes in India.

Keywords: diabetes registry; type 1 diabetes; type 2 diabetes; youth-onset diabetes.

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Conflict of interest statement

The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

Figures

Figure 1.
Figure 1.
Organogram YDR.
Figure 2.
Figure 2.
Diabetes category wise distributions of YDR cases.
See this image and copyright information in PMC

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