Creating a Global Community of Practice for Oncofertility

Abstract

Fertility preservation in the cancer setting, known as oncofertility, is a field that requires cross-disciplinary interaction between physicians, basic scientists, clinical researchers, ethicists, lawyers, educators, and religious leaders. Funded by the National Institutes of Health, the Oncofertility Consortium (OC) was formed to be a scientifically grounded, transparent, and altruistic resource, both intellectual and monetary, for building this new field of practice capable of addressing the unique needs of young patients with cancer. The OC has expanded its attention to include other nonmalignant conditions that can threaten fertility, and the work of the OC now extends around the globe, involving partners who together have created a community of shared effort, resources, and practices. The OC creates materials that are translated, disseminated, and amended by all participants in the field, and local programs of excellence have developed worldwide to accelerate the pace and improve the quality of oncofertility research and practice. Here we review the global oncofertility programs and the capacity building activities that strengthen these research and clinical programs, ultimately improving patient care.

Figure 1

Map of countries (purple) represented in Oncofertility Consortium global partners network.

Figure 2

Flow chart: becoming global partner. OC, Oncofertility Consortium.

Figure 3

Oncofertility Consortium global partnerships model.

Figure 4

Brazilian Oncofertility Consortium.

Figure 5

Japan Society for Fertility Preservation.

Figure 6

Portuguese Centre for Fertility Preservation.

Figure 7

Korea National Fertility Preservation Network.