Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2016 Summer;10(2):217-24.
doi: 10.1353/cpr.2016.0027.

Much Ventured, Much Gained: Community-Engaged Data Collection by Adolescents and Young Adults

Shoba Ramanadhan, Rebekah H Nagler, Michael P McCauley, Vilma Lora, Sara Minsky, Carmenza Bruff, Yudy F Muneton, Rachel F McCloud, Elaine Puleo, Kasisomayajula Viswanath

Much Ventured, Much Gained: Community-Engaged Data Collection by Adolescents and Young Adults

Shoba Ramanadhan et al. Prog Community Health Partnersh. 2016 Summer.

Abstract

Background: Community-engaged data collection offers an important opportunity to build community capacity to harness the power of data and create social change.

Objectives: To share lessons learned from engaging 16 adolescents and young adults from a partner community to collect data for a public opinion survey as part of a broader community-based participatory research (CBPR) project.

Methods: We conducted an analysis of archival documents, process data, and an assessment of survey assistants' experiences.

Lessons learned: High-quality data were collected from a hard-to-reach population. Survey assistants benefited from exposure to research and gained professional skills. Key challenges included conducting surveys in challenging environments and managing schedule constraints during the school year. The tremendous investment made by project partners was vital for success.

Conclusions: Investments required to support engaged data collection were larger than anticipated, as were the rewards, prompting greater attention to the integration of adolescents and young adults in research efforts.

PubMed Disclaimer

Figures

Figure 1.
Figure 1.
The participatory knowledge translation (PaKT) framework. Relevant components are highlighted.
See this image and copyright information in PMC

References

    1. Koh HK, Graham G, Glied SA. Reducing racial and ethnic disparities: The action plan from the Department of Health and Human Services. Health Aff (Millwood). 2011;10:1822–9. - PubMed
    1. Ross LF, Loup A, Nelson RM, et al. Human subjects protections in community-engaged research: A research ethics framework. J Empir Res Human Res Ethics. 2010;5(1):5–17. - PMC - PubMed
    1. Lasker RD, Weiss ES, Miller R. Partnership synergy: A practical framework for studying and strengthening the collaborative advantage. Milbank Q. 2001;79(2):179–205. - PMC - PubMed
    1. Viswanathan M, Ammerman A, Eng E, et al. Community-based participatory research: Assessing the evidence. Report/ Technology Assessment No. 99. Rockville (MD): Agency for Healthcare Research and Quality (Prepared by RTI–University of North Carolina Evidence-based Practice Center under Contract No. 290–02–0016); 2004.
    1. Israel BA, Schulz AJ, Parker EA, et al. Review of community-based research: Assessing partnership approaches to improve public health. Annu Rev Public Health. 1998;19:173–201. - PubMed

Publication types

LinkOut - more resources