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. 2016 Jul 1:354:i3319.
doi: 10.1136/bmj.i3319.

Patient focused registries can improve health, care, and science

Eugene C Nelson  1 , Mary Dixon-Woods  2 , Paul B Batalden  1 , Karen Homa  3 , Aricca D Van Citters  1 , Tamara S Morgan  4 , Elena Eftimovska  5 , Elliott S Fisher  1 , John Ovretveit  5 , Wade Harrison  1 , Cristin Lind  6 , Staffan Lindblad  7
Affiliations

Patient focused registries can improve health, care, and science

Eugene C Nelson et al. BMJ. .

Abstract

Eugene Nelson and colleagues call for registries of care data to be transformed into patient centred interactive learning systems

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Conflict of interest statement

Competing interests We have read and understood BMJ policy on declaration of interests and declare ECN owns stock in Quality Data Management. This work is supported by funding from the Robert Wood Johnson Foundation (Grants: #71211 and 72313), the Cystic Fibrosis Foundation (Grant #OCONNO04Q10), and the Crohn’s and Colitis Foundation of America Quality of Care Initiative (Grant #3372). TSM was funded by the Multidisciplinary Clinical Research Center for Musculoskeletal Diseases at Dartmouth (P60 AR-062799), sponsored by the National Institute for Arthritis and Musculoskeletal and Skin Diseases of the National Institutes of Health. EE was funded by the Swedish Research Council for Health, Work Life and Welfare (#2014-4238). MD-W is supported by a Wellcome Trust senior investigator award (WT09789).

Figures

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Fig 1 Model of registry enabled care and learning health system
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Fig 2 Mean C reactive protein concentrations of patients in the Swedish Rheumatology Quality Registry living in Gävle County and the rest of Sweden
See this image and copyright information in PMC

References

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