The Cystic Fibrosis Foundation Patient Registry. Design and Methods of a National Observational Disease Registry

Anne L Stephenson^{1

2

3}, Scott C Bell^{4

5

6}

Affiliations

¹ 1 Department of Respirology, St. Michael's Hospital, Toronto, Ontario, Canada.
² 2 Keenan Research Centre, Li Ka Shing Knowledge Institute, St. Michael's Hospital, Toronto, Ontario, Canada.
³ 3 Department of Medicine, University of Toronto, Toronto, Ontario, Canada.
⁴ 4 Lung Bacteria Group, QIMR Berghofer Medical Research Institute, Brisbane, Queensland, Australia.
⁵ 5 School of Medicine, The University of Queensland, Brisbane, Australia; and.
⁶ 6 Department of Thoracic Medicine, The Prince Charles Hospital, Brisbane, Australia.

Editorial

Anne L Stephenson et al. Ann Am Thorac Soc. 2016 Jul.

. 2016 Jul;13(7):1014-5.

doi: 10.1513/AnnalsATS.201604-250ED.

Anne L Stephenson^{1

2

3}, Scott C Bell^{4

5

6}

¹ 1 Department of Respirology, St. Michael's Hospital, Toronto, Ontario, Canada.
² 2 Keenan Research Centre, Li Ka Shing Knowledge Institute, St. Michael's Hospital, Toronto, Ontario, Canada.
³ 3 Department of Medicine, University of Toronto, Toronto, Ontario, Canada.
⁴ 4 Lung Bacteria Group, QIMR Berghofer Medical Research Institute, Brisbane, Queensland, Australia.
⁵ 5 School of Medicine, The University of Queensland, Brisbane, Australia; and.
⁶ 6 Department of Thoracic Medicine, The Prince Charles Hospital, Brisbane, Australia.

No abstract available

Comment on

The Cystic Fibrosis Foundation Patient Registry. Design and Methods of a National Observational Disease Registry.
Knapp EA, Fink AK, Goss CH, Sewall A, Ostrenga J, Dowd C, Elbert A, Petren KM, Marshall BC. Knapp EA, et al. Ann Am Thorac Soc. 2016 Jul;13(7):1173-9. doi: 10.1513/AnnalsATS.201511-781OC. Ann Am Thorac Soc. 2016. PMID: 27078236