. 2016 Jul 12;14 Suppl 1(Suppl 1):41.

doi: 10.1186/s12969-016-0098-0.

Proceedings of the 2016 Childhood Arthritis and Rheumatology Research Alliance (CARRA) Scientific Meeting : Toronto, Canada. 14-17 April 2016

Lampros Fotis¹, Nur Shaikh¹, Kevin Baszis¹, Anthony French¹, Phillip Tarr¹, Sriharsha Grevich², Peggy Lee³, Sarah Ringold⁴, Brian Leroux⁵, Hannah Leahey⁶, Megan Yuasa⁶, Jessica Foster⁷, Jeremy Sokolove⁸, Lauren Lahey⁸, William Robinson⁸, Joshua Newsom⁶, Anne Stevens^{2

7}, Rie Karasawa⁹, Mayumi Tamaki⁹, Megumi Tanaka⁹, Toshiko Sato⁹, Kazuo Yudoh⁹, James N. Jarvis¹⁰, Halima Moncrieffe^{11

12}, Mark F. Bennett¹², Monica Tsoras¹¹, Lorie Luyrink¹¹, Huan Xu¹², Sampath Prahalad¹³, Paula Morris¹⁴, Jason Dare¹⁴, Peter A. Nigrovic¹⁵, Margalit Rosenkranz¹⁶, Mara Becker¹⁷, Kathleen M. O’Neil¹⁸, Thomas Griffin¹⁹, Daniel J. Lovell¹¹, Alexei A. Grom¹¹, Mario Medvedovic¹², Susan D. Thompson^{11

12}, Lisha Zhu²⁰, Kaiyu Jiang²⁰, Laiping Wong²⁰, Michael J Buck²⁰, Yanmin Chen²⁰, Halima Moncrieffe²¹, Laura Brungs²², Tao Liu²⁰, Ting Wang²², James N Jarvis²⁰, Khaled Alsaeid^{23

24}, Jasim Alfailakawi²⁴, Hamid Alenezi²⁴, Hazim Alsaeed²⁴, Tim Beukelman²⁵, Marc Natter^{26

27}, Norm Ilowite²⁸, Kelly Mieszkalski²⁹, Grendel Burrell²⁹, Brian Best²⁹, Helen Bristow³⁰, Shannon Carr³⁰, Anne Dennos³⁰, Rachel Kaufmann³⁰, Yukiko Kimura³¹, Laura Schanberg³⁰, Peter R. Blier^{32

33}, Alexis Boneparth³⁴, Scott E. Wenderfer³⁵, L. Nandini Moorthy³⁴, Suhas M. Radhakrishna³⁶, Anna Carmela P. Sagcal-Gironella³⁵, Emily von Scheven³⁷, Kader Cetin Gedik³⁸, Salma Siddique³⁹, Cassyanne L. Aguiar³⁸, Doruk Erkan³⁹, Ezra Cohen¹⁵, Yvonne Lee⁴⁰, Michelle Dossett⁴¹, Darshan Mehta⁴¹, Roger Davis⁴², Mileka Gilbert⁴³, Beatrice Goilav⁴⁴, Esra Meidan¹⁵, Joyce Hsu⁴⁵, Alexis Boneparth⁴⁶, Anabelle Chua³⁰, Stacy Ardoin⁴⁷, Scott E. Wenderfer³⁵, Emily Von Scheven⁴⁸, Natasha M. Ruth⁴³, Joyce Hui-Yuen⁴⁹, Kader Cetin Gedik⁴⁹, Liza Bermudez⁵⁰, Ashlea Cook⁵⁰, Lisa Imundo⁵¹, Amy Starr⁵⁰, Andrew Eichenfield⁵⁰, Anca Askanase⁵¹, Ginger Janow⁵², Laura E. Schanberg^{53

54}, Soko Setoguchi⁵⁴, Victor Hasselblad⁵⁴, Elizabeth D. Mellins^#⁵⁵, Rayfel Schneider^#⁵⁶, Yukiko Kimura^#⁵²; The CARRA Legacy Registry Investigators⁵⁴; Yukiko Kimura³¹, Sriharsha Grevich⁵⁷, Timothy Beukelman⁵⁸, Esi Morgan¹¹, T. Brent Graham⁵⁹, Maria Ibarra¹⁷, Yonit Sterba Ruas⁶⁰, Marisa Klein-Gitelman⁶¹, Karen Onel⁶², Sampath Prahalad⁶³, Marilynn Punaro⁶⁴, Sarah Ringold⁵⁷, Dana Toib⁶⁵, Heather Van Mater³⁰, Jennifer E. Weiss³¹, Pamela F. Weiss⁶⁶, Kelly Mieszkalski⁶⁷, Laura E. Schanberg³⁰, Timothy S. H. Kwok⁶⁸, Jacinthe Bisaillon⁶⁹, Christine Smith⁷⁰, Lucie Brosseau⁷¹, Jennifer Stinson⁷², Adam M. Huber⁷³, Ciaran M. Duffy⁷⁴, Karine Toupin April⁷⁵, Laura B. Lewandowski^{76

77

78

79}, Christiaan Scott⁷⁸, Suzanne C. Li³¹, Kathryn S. Torok⁸⁰, C. Egla Rabinovich³⁰, Sandy D. Hong⁸¹, Mara L Becker¹⁷, Fatma Dedeoglu¹⁵, Maria F. Ibarra¹⁷, Polly J Ferguson⁸¹, Rob C. Fuhbrigge¹⁵, Katie G. Stewart⁶⁴, Elena Pope⁸², Ronald M. Laxer⁸², Thomas G. Mason⁸³, Gloria C. Higgins⁴⁷, Xiaohu Li⁸⁴, Marilynn G. Punaro⁶⁴, George Tomlinson⁸⁴, Eleanor Pullenayegum⁸⁴, John Matelski⁸⁴, Laura Schanberg³⁰, Brian M. Feldman⁸², Kalpana Manthiram⁸⁵, Hernan Correa⁸⁶, Kathryn Edwards⁸⁵, Edward J. Oberle⁸⁷, Michelle Bayer⁸⁸, Dominic O. Co⁸⁸, Hatice Ezgi Baris¹⁵, Yvonne Chiu⁸⁸, Adam Huber⁸⁹, Susan Kim^{15

90}, Edward J. Oberle^{47

91}, Timothy Beukelman²⁵, Amir B. Orandi⁹², Kevin W. Baszis⁹², Vikas Dharnidharka⁹², Mark F. Hoeltzel⁹³; for the CARRA JDM Committee; Ann Reed³⁰, Adam Huber⁹⁴, George Tomlinson⁹⁵, Eleanor Pullenayegum⁹⁵, John Matelski⁹⁵, Y. Ingrid Goh⁹⁵, Laura Schanberg³⁰, Brian M. Feldman⁹⁵, Anja Schnabel⁹⁶, Ursula Range⁹⁷, Gabriele Hahn⁹⁸, Timo Siepmann⁹⁹, Reinhard Berner⁹⁶, Christian Michael Hedrich⁹⁶, Brandi Stevens¹⁶, Kathryn S. Torok¹⁶, Suzanne Li³¹, Nicole Hershey¹⁶, Megan Curran¹⁰⁰, Gloria Higgins⁴⁷, Katharine Moore¹⁰¹, Egla Rabinovich¹⁰², Anne M. Stevens¹⁰³; for the CARRA Registry Investigators¹⁰⁴; Jennifer Stinson¹⁰⁵, Mark Connelly¹⁰⁶, Adam Huber¹⁰⁷, Nadia Luca¹⁰⁸, Lynn Spiegel¹⁰⁵, Argerie Tsimicalis¹⁰⁹, Stephanie Luca¹⁰⁵, Naweed Tajuddin¹⁰⁵, Roberta Berard¹¹⁰, Julia Barsalou¹¹¹, Sarah Campillo¹¹², Paul Dancey¹¹³, Ciaran Duffy¹¹⁴, Brian Feldman¹⁰⁵, Nicole Johnson¹⁰⁸, Patrick McGrath¹⁰⁷, Natalie Shiff¹¹⁵, Shirley Tse¹⁰⁵, Lori Tucker¹¹⁶, Charles Victor⁹⁵, Jennifer Stinson¹¹⁷, Chitra Lalloo¹¹⁷, Lauren Harris^{117

95

118}, Joseph Cafazzo¹¹⁹, Lynn Spiegel¹¹⁷, Brian Feldman¹¹⁷, Nadia Luca¹⁰⁸, Ronald Laxer¹¹⁷, Danielle R. Bullock¹²⁰, Richard K. Vehe¹²⁰, Lei Zhang¹²¹, Colleen K. Correll¹²⁰, Suhas Ganguli¹²², Max Shenberger¹²², Ritesh Korumilli¹²³, Beth Gottlieb¹²², Martha Rodriguez¹²⁴, Deirdre de Ranieri¹²⁴, Karen Onel¹²⁴, Linda Wagner-Weiner¹²⁴, Melissa Tesher¹²⁴, Elizabeth Roth Wojcicki¹²⁵, Kristyn L. Maletta¹²⁶, Dominic O. Co¹²⁵, Marsha Malloy¹²⁵, Sarah Thomson¹²⁷, Judyann C. Olson¹²⁵, Scott E. Wenderfer³⁵, Mileka Gilbert⁴³, Joyce Hsu⁴⁵, Sangeeta Sule¹²⁸, Tamar B. Rubinstein⁴⁴, Beatrice Goilav⁴⁴, Daryl M. Okamura⁵⁷, Annabelle Chua³⁰, Laurence A. Greenbaum¹³, Jerome C. Lane¹²⁹, Emily von Scheven¹³⁰, Stacy P. Ardoin⁴⁷, Natasha M. Ruth⁴³, Jennifer M. P. Woo¹³¹, Marsha M. Malloy¹³², James A. Jegers¹³³, Dustin J. Hahn¹³¹, Mary K. Hintermeyer¹²⁷, Stacey M. Martinetti¹³², Gretchen R. Heckel¹²⁷, Elizabeth L. Roth-Wojcicki¹³², Dominic O. Co¹³²

Affiliations

¹ Washington University School of Medicine, St Louis, Missouri USA
² Department of Pediatrics, Division of Rheumatology, University of Washington, Seattle, WA USA
³ Department of Oral Medicine, University of Washington, Seattle, WA USA
⁴ Department of Rheumatology, Seattle Children’s Hospital, Seattle, WA USA
⁵ Department of Oral Health Sciences, University of Washington, Seattle, WA USA
⁶ University of Washington, Seattle, WA USA
⁷ Seattle Children’s Research Institute, Seattle, WA USA
⁸ Department of Medicine, Division of Immunology and Rheumatology, Stanford University, Stanford, CA USA
⁹ St. Marianna University School of Medicine, Kawasaki, Japan
¹⁰ University at Buffalo, State University of New York, Buffalo, NY USA
¹¹ Cincinnati Children’s Hospital Medical Center, Cincinnati, OH USA
¹² University of Cincinnati, Cincinnati, OH USA
¹³ Emory University, Atlanta, GA USA
¹⁴ Arkansas Children’s Hospital Research Institute, Little Rock, AR USA
¹⁵ Boston Children’s Hospital, Boston, MA USA
¹⁶ Children’s Hospital of Pittsburgh of UPMC, Pittsburgh, PA USA
¹⁷ Children’s Mercy Hospital, Kansas City, MO USA
¹⁸ Riley Hospital for Children at IU Health, Indianapolis, IN USA
¹⁹ Levine Children’s Hospital, Charlotte, NC USA
²⁰ University at Buffalo, The State University of New York, Buffalo, NY USA
²¹ Cincinnati Children’s Medical Ctr, Cincinnati, OH USA
²² Washington University, St. Louis, MO USA
²³ Department of Pediatrics, Kuwait University, Kuwait City, Kuwait
²⁴ Mubarak Hospital, Jabriya, Kuwait
²⁵ University of Alabama at Birmingham, Birmingham, AL USA
²⁶ Tufts University, Medford, MA USA
²⁷ Harvard University, Boston, MA USA
²⁸ The Children’s Hospital at Montefiore, Bronx, NY USA
²⁹ CARRA, Inc, Durham, NC USA
³⁰ Duke University, Durham, NC USA
³¹ Hackensack University Medical Center, Hackensack, NJ USA
³² Baystate Children’s Hospital, Springfield, MA USA
³³ Tufts University School of Medicine, Boston, MA USA
³⁴ Rutgers-Robert Wood Johnson Medical School, New Brunswick, NJ USA
³⁵ Baylor College of Medicine, Houston, TX USA
³⁶ Rady Children’s Hospital, San Diego, CA USA
³⁷ University of California at San Francisco, San Francisco, CA USA
³⁸ Cohen Children’s Medical Center of New York, New York, USA
³⁹ Hospital for Special Surgery-Weill Cornell Medical Center, New York, NY USA
⁴⁰ Brigham and Women’s Hospital, Boston, MA USA
⁴¹ Massachusetts General Hospital, Boston, MA USA
⁴² Beth Israel Deaconess, Boston, MA USA
⁴³ Medical University of South Carolina, Charleston, SC USA
⁴⁴ Children’s Hospital at Montefiore, Bronx, NY USA
⁴⁵ Stanford University, Stanford, CA USA
⁴⁶ Rutgers University, Rutgers, NJ USA
⁴⁷ Nationwide Children’s Hospital, Columbus, OH USA
⁴⁸ UCSF, San Francisco, CA USA
⁴⁹ Division of Pediatric Rheumatology, Cohen Children’s Medical Center, New Hyde Park, NY USA
⁵⁰ Division of Pediatric Rheumatology, Morgan Stanley Children’s Hospital of New York-Presbyterian, Columbia University Medical Center, New York, NY USA
⁵¹ Division of Adult Rheumatology, Columbia University Medical Center, New York, NY USA
⁵² Pediatrics, Joseph M Sanzari Children’s Hospital, Hackensack, NJ USA
⁵³ Pediatrics, Duke University, Durham, NC USA
⁵⁴ Duke Clinical Research Institute, Durham, NC USA
⁵⁵ Pediatrics, Stanford University, Stanford, USA
⁵⁶ Pediatrics, Hospital for Sick Children and University of Toronto, Toronto, Canada
⁵⁷ Seattle Children’s Hospital, Seattle, WA USA
⁵⁸ University of Alabama, Tuscaloosa, AL USA
⁵⁹ Vanderbilt University, Vanderbilt, TN USA
⁶⁰ Children’s Hospital of Montefiore, Bronx, NY USA
⁶¹ Lurie Children’s Hospital of Chicago, Chicago, IL USA
⁶² Comer Children’s Hospital of Chicago, Chicago, IL USA
⁶³ Emory Children’s Hospital, Atlanta, GA USA
⁶⁴ Texas Scottish Rite Hospital, Dallas, TX USA
⁶⁵ St. Christopher’s Hospital for Children, Philadelphia, PA USA
⁶⁶ Children’s Hospital of Philadelphia, Philadelphia, PA USA
⁶⁷ CARRA, Durham, NC USA
⁶⁸ Undergraduate Medical Education, Faculty of Medicine, University of Ottawa, Ottawa, Ontario Canada
⁶⁹ School of Nursing Sciences, Faculty of Health Sciences, University of Ottawa, Ottawa, Ontario Canada
⁷⁰ School of Epidemiology, Public Health and Preventive Medicine, Faculty of Medicine, University of Ottawa, Ottawa, Ontario Canada
⁷¹ School of Rehabilitation Sciences, Faculty of Health Sciences, University of Ottawa, Ottawa, Ontario Canada
⁷² Hospital for Sick Children, Lawrence S. Bloomberg Faculty of Nursing University of Toronto, Toronto, Ontario Canada
⁷³ Department of Pediatrics, IWK Health Centre, Dalhousie University, Halifax, Nova Scotia Canada
⁷⁴ Department of Pediatrics, Faculty of Medicine, University of Ottawa, Children’s Hospital of Eastern Ontario Research Institute, Ottawa, Ontario Canada
⁷⁵ Department of Pediatrics, Children’s Hospital of Eastern Ontario Research Institute, Faculty of Medicine, School of Rehabilitation Sciences, Faculty of Health Sciences, University of Ottawa, Ottawa, Ontario Canada
⁷⁶ Pediatric Rheumatology, Duke University Medical Center, Durham, NC USA
⁷⁷ Duke Global Health Institute, Duke University, Durham, NC USA
⁷⁸ Paediatric Rheumatology, Red Cross War Memorial Children’s Hospital and University of Cape Town, Cape Town, South Africa
⁷⁹ National Institute of Arthritis, Musculoskeletal, and Skin Diseases, NIH, Bethesda, MD USA
⁸⁰ Children’s Hospital of Pittsburgh, UPMC, Pittsburgh, PA USA
⁸¹ University of Iowa, Iowa City, IA USA
⁸² Hospital for Sick Kids, Toronto, Canada
⁸³ Mayo Clinic, Rochester, MN USA
⁸⁴ Stevens Institute of Technology, Hoboken, NJ USA
⁸⁵ Division of Pediatric Infectious Diseases, Vanderbilt University School of Medicine, Nashville, TN USA
⁸⁶ Department of Pathology, Immunology, and Microbiology, Vanderbilt University School of Medicine, Nashville, TN USA
⁸⁷ Nationwide Children’s Hospital, The Ohio State University, Columbus, OH USA
⁸⁸ Children’s Hospital of Wisconsin, Medical College of Wisconsin, Milwaukee, WI USA
⁸⁹ IWK Health Centre, Dalhousie University, Halifax, NS Canada
⁹⁰ Harvard Medical School, Boston, MA USA
⁹¹ The Ohio State University, Columbus, OH USA
⁹² St. Louis Children’s Hospital, Washington University School of Medicine, St. Louis, MO USA
⁹³ Mott Children’s Hospital, University of Michigan Medical School, Ann Arbor, MI USA
⁹⁴ Dalhousie University, Halifax, NS Canada
⁹⁵ University of Toronto, Toronto, Canada
⁹⁶ Pediatric Rheumatology and Immunology, Children’s Hospital Dresden, Universitätsklinikum Carl Gustav Carus, Technische Universität Dresden, Dresden, Germany
⁹⁷ Institute for Medical Informatics and Biometry, Universitätsklinikum Carl Gustav Carus, Technische Universität Dresden, Dresden, Germany
⁹⁸ Department of Radiology, Universitätsklinikum Carl Gustav Carus, Technische Universität Dresden, Dresden, Germany
⁹⁹ Division of Health Care Sciences, Center for Clinical Research and Management Education, Dresden International University, Dresden, Germany
¹⁰⁰ Northwestern University Feinberg School of Medicine, Chicago, IL USA
¹⁰¹ Children’s Hospital of Denver, Denver, CO USA
¹⁰² Duke University Medical Center, Durham, NC USA
¹⁰³ Seattle Children’s Research Institute, University of Washington, Seattle, WA USA
¹⁰⁴ Childhood Arthritis and Rheumatology Research Alliance, ᅟ, USA
¹⁰⁵ The Hospital for Sick Children, University of Toronto, Toronto, Canada
¹⁰⁶ University of Kansas Medical Center, Kansas City, MO USA
¹⁰⁷ IWK Health Centre, Halifax, Nova Scotia Canada
¹⁰⁸ Alberta Children’s Hospital, Calgary, Alberta Canada
¹⁰⁹ McGill University, Montreal, Canada
¹¹⁰ Children’s Hospital of Western Ontario, London, Canada
¹¹¹ CHU Ste-Justine, Montreal, Quebec, Canada
¹¹² Montreal Children’s Hospital, Montreal, Canada
¹¹³ Memorial University of Newfoundland, Newfoundland, Canada
¹¹⁴ Children’s Hospital of Eastern Ontario, Ottawa, Canada
¹¹⁵ University of Florida, Gainesville, FL USA
¹¹⁶ British Columbia Children’s Hospital, Vancouver, British Columbia Canada
¹¹⁷ The Hospital for Sick Children, Toronto, Canada
¹¹⁸ Centre for Global eHealth Innovation, Toronto, Canada
¹¹⁹ University Health Network, Toronto, Canada
¹²⁰ Division of Pediatric Rheumatology, Department of Pediatrics, University of Minnesota Masonic Children’s Hospital, Minneapolis, MN USA
¹²¹ Clinical and Translational Sciences Institute, University of Minnesota, Minneapolis, MN USA
¹²² Pediatric Rheumatology, Cohen Children’s Medical Center, New York, NY 11040 USA
¹²³ Pediatrics, Flushing Hospital Medical Center, New York, NY 11355 USA
¹²⁴ University of Chicago Medicine Comer Children’s Hospital, Chicago, IL USA
¹²⁵ Medical College of WI, Milwaukee, WI USA
¹²⁶ National Outcomes Center, Milwaukee, WI USA
¹²⁷ Children’s Hospital of Wisconsin, Milwaukee, WI USA
¹²⁸ Johns Hopkins Children’s Hospital, Baltimore, MD USA
¹²⁹ Northwestern University, Evanston, IL USA
¹³⁰ University of California San Francisco, San Francisco, CA USA
¹³¹ University of Wisconsin-Milwaukee, Milwaukee, WI USA
¹³² Medical College of Wisconsin, Milwaukee, WI USA
¹³³ Parent of Patient, Milwaukee, WI USA

^# Contributed equally.

PMID: 27409414
PMCID: PMC4943514
DOI: 10.1186/s12969-016-0098-0

Proceedings of the 2016 Childhood Arthritis and Rheumatology Research Alliance (CARRA) Scientific Meeting : Toronto, Canada. 14-17 April 2016

Lampros Fotis et al. Pediatr Rheumatol Online J. 2016.

. 2016 Jul 12;14 Suppl 1(Suppl 1):41.

doi: 10.1186/s12969-016-0098-0.

Authors

Affiliations

¹ Washington University School of Medicine, St Louis, Missouri USA
² Department of Pediatrics, Division of Rheumatology, University of Washington, Seattle, WA USA
³ Department of Oral Medicine, University of Washington, Seattle, WA USA
⁴ Department of Rheumatology, Seattle Children’s Hospital, Seattle, WA USA
⁵ Department of Oral Health Sciences, University of Washington, Seattle, WA USA
⁶ University of Washington, Seattle, WA USA
⁷ Seattle Children’s Research Institute, Seattle, WA USA
⁸ Department of Medicine, Division of Immunology and Rheumatology, Stanford University, Stanford, CA USA
⁹ St. Marianna University School of Medicine, Kawasaki, Japan
¹⁰ University at Buffalo, State University of New York, Buffalo, NY USA
¹¹ Cincinnati Children’s Hospital Medical Center, Cincinnati, OH USA
¹² University of Cincinnati, Cincinnati, OH USA
¹³ Emory University, Atlanta, GA USA
¹⁴ Arkansas Children’s Hospital Research Institute, Little Rock, AR USA
¹⁵ Boston Children’s Hospital, Boston, MA USA
¹⁶ Children’s Hospital of Pittsburgh of UPMC, Pittsburgh, PA USA
¹⁷ Children’s Mercy Hospital, Kansas City, MO USA
¹⁸ Riley Hospital for Children at IU Health, Indianapolis, IN USA
¹⁹ Levine Children’s Hospital, Charlotte, NC USA
²⁰ University at Buffalo, The State University of New York, Buffalo, NY USA
²¹ Cincinnati Children’s Medical Ctr, Cincinnati, OH USA
²² Washington University, St. Louis, MO USA
²³ Department of Pediatrics, Kuwait University, Kuwait City, Kuwait
²⁴ Mubarak Hospital, Jabriya, Kuwait
²⁵ University of Alabama at Birmingham, Birmingham, AL USA
²⁶ Tufts University, Medford, MA USA
²⁷ Harvard University, Boston, MA USA
²⁸ The Children’s Hospital at Montefiore, Bronx, NY USA
²⁹ CARRA, Inc, Durham, NC USA
³⁰ Duke University, Durham, NC USA
³¹ Hackensack University Medical Center, Hackensack, NJ USA
³² Baystate Children’s Hospital, Springfield, MA USA
³³ Tufts University School of Medicine, Boston, MA USA
³⁴ Rutgers-Robert Wood Johnson Medical School, New Brunswick, NJ USA
³⁵ Baylor College of Medicine, Houston, TX USA
³⁶ Rady Children’s Hospital, San Diego, CA USA
³⁷ University of California at San Francisco, San Francisco, CA USA
³⁸ Cohen Children’s Medical Center of New York, New York, USA
³⁹ Hospital for Special Surgery-Weill Cornell Medical Center, New York, NY USA
⁴⁰ Brigham and Women’s Hospital, Boston, MA USA
⁴¹ Massachusetts General Hospital, Boston, MA USA
⁴² Beth Israel Deaconess, Boston, MA USA
⁴³ Medical University of South Carolina, Charleston, SC USA
⁴⁴ Children’s Hospital at Montefiore, Bronx, NY USA
⁴⁵ Stanford University, Stanford, CA USA
⁴⁶ Rutgers University, Rutgers, NJ USA
⁴⁷ Nationwide Children’s Hospital, Columbus, OH USA
⁴⁸ UCSF, San Francisco, CA USA
⁴⁹ Division of Pediatric Rheumatology, Cohen Children’s Medical Center, New Hyde Park, NY USA
⁵⁰ Division of Pediatric Rheumatology, Morgan Stanley Children’s Hospital of New York-Presbyterian, Columbia University Medical Center, New York, NY USA
⁵¹ Division of Adult Rheumatology, Columbia University Medical Center, New York, NY USA
⁵² Pediatrics, Joseph M Sanzari Children’s Hospital, Hackensack, NJ USA
⁵³ Pediatrics, Duke University, Durham, NC USA
⁵⁴ Duke Clinical Research Institute, Durham, NC USA
⁵⁵ Pediatrics, Stanford University, Stanford, USA
⁵⁶ Pediatrics, Hospital for Sick Children and University of Toronto, Toronto, Canada
⁵⁷ Seattle Children’s Hospital, Seattle, WA USA
⁵⁸ University of Alabama, Tuscaloosa, AL USA
⁵⁹ Vanderbilt University, Vanderbilt, TN USA
⁶⁰ Children’s Hospital of Montefiore, Bronx, NY USA
⁶¹ Lurie Children’s Hospital of Chicago, Chicago, IL USA
⁶² Comer Children’s Hospital of Chicago, Chicago, IL USA
⁶³ Emory Children’s Hospital, Atlanta, GA USA
⁶⁴ Texas Scottish Rite Hospital, Dallas, TX USA
⁶⁵ St. Christopher’s Hospital for Children, Philadelphia, PA USA
⁶⁶ Children’s Hospital of Philadelphia, Philadelphia, PA USA
⁶⁷ CARRA, Durham, NC USA
⁶⁸ Undergraduate Medical Education, Faculty of Medicine, University of Ottawa, Ottawa, Ontario Canada
⁶⁹ School of Nursing Sciences, Faculty of Health Sciences, University of Ottawa, Ottawa, Ontario Canada
⁷⁰ School of Epidemiology, Public Health and Preventive Medicine, Faculty of Medicine, University of Ottawa, Ottawa, Ontario Canada
⁷¹ School of Rehabilitation Sciences, Faculty of Health Sciences, University of Ottawa, Ottawa, Ontario Canada
⁷² Hospital for Sick Children, Lawrence S. Bloomberg Faculty of Nursing University of Toronto, Toronto, Ontario Canada
⁷³ Department of Pediatrics, IWK Health Centre, Dalhousie University, Halifax, Nova Scotia Canada
⁷⁴ Department of Pediatrics, Faculty of Medicine, University of Ottawa, Children’s Hospital of Eastern Ontario Research Institute, Ottawa, Ontario Canada
⁷⁵ Department of Pediatrics, Children’s Hospital of Eastern Ontario Research Institute, Faculty of Medicine, School of Rehabilitation Sciences, Faculty of Health Sciences, University of Ottawa, Ottawa, Ontario Canada
⁷⁶ Pediatric Rheumatology, Duke University Medical Center, Durham, NC USA
⁷⁷ Duke Global Health Institute, Duke University, Durham, NC USA
⁷⁸ Paediatric Rheumatology, Red Cross War Memorial Children’s Hospital and University of Cape Town, Cape Town, South Africa
⁷⁹ National Institute of Arthritis, Musculoskeletal, and Skin Diseases, NIH, Bethesda, MD USA
⁸⁰ Children’s Hospital of Pittsburgh, UPMC, Pittsburgh, PA USA
⁸¹ University of Iowa, Iowa City, IA USA
⁸² Hospital for Sick Kids, Toronto, Canada
⁸³ Mayo Clinic, Rochester, MN USA
⁸⁴ Stevens Institute of Technology, Hoboken, NJ USA
⁸⁵ Division of Pediatric Infectious Diseases, Vanderbilt University School of Medicine, Nashville, TN USA
⁸⁶ Department of Pathology, Immunology, and Microbiology, Vanderbilt University School of Medicine, Nashville, TN USA
⁸⁷ Nationwide Children’s Hospital, The Ohio State University, Columbus, OH USA
⁸⁸ Children’s Hospital of Wisconsin, Medical College of Wisconsin, Milwaukee, WI USA
⁸⁹ IWK Health Centre, Dalhousie University, Halifax, NS Canada
⁹⁰ Harvard Medical School, Boston, MA USA
⁹¹ The Ohio State University, Columbus, OH USA
⁹² St. Louis Children’s Hospital, Washington University School of Medicine, St. Louis, MO USA
⁹³ Mott Children’s Hospital, University of Michigan Medical School, Ann Arbor, MI USA
⁹⁴ Dalhousie University, Halifax, NS Canada
⁹⁵ University of Toronto, Toronto, Canada
⁹⁶ Pediatric Rheumatology and Immunology, Children’s Hospital Dresden, Universitätsklinikum Carl Gustav Carus, Technische Universität Dresden, Dresden, Germany
⁹⁷ Institute for Medical Informatics and Biometry, Universitätsklinikum Carl Gustav Carus, Technische Universität Dresden, Dresden, Germany
⁹⁸ Department of Radiology, Universitätsklinikum Carl Gustav Carus, Technische Universität Dresden, Dresden, Germany
⁹⁹ Division of Health Care Sciences, Center for Clinical Research and Management Education, Dresden International University, Dresden, Germany
¹⁰⁰ Northwestern University Feinberg School of Medicine, Chicago, IL USA
¹⁰¹ Children’s Hospital of Denver, Denver, CO USA
¹⁰² Duke University Medical Center, Durham, NC USA
¹⁰³ Seattle Children’s Research Institute, University of Washington, Seattle, WA USA
¹⁰⁴ Childhood Arthritis and Rheumatology Research Alliance, ᅟ, USA
¹⁰⁵ The Hospital for Sick Children, University of Toronto, Toronto, Canada
¹⁰⁶ University of Kansas Medical Center, Kansas City, MO USA
¹⁰⁷ IWK Health Centre, Halifax, Nova Scotia Canada
¹⁰⁸ Alberta Children’s Hospital, Calgary, Alberta Canada
¹⁰⁹ McGill University, Montreal, Canada
¹¹⁰ Children’s Hospital of Western Ontario, London, Canada
¹¹¹ CHU Ste-Justine, Montreal, Quebec, Canada
¹¹² Montreal Children’s Hospital, Montreal, Canada
¹¹³ Memorial University of Newfoundland, Newfoundland, Canada
¹¹⁴ Children’s Hospital of Eastern Ontario, Ottawa, Canada
¹¹⁵ University of Florida, Gainesville, FL USA
¹¹⁶ British Columbia Children’s Hospital, Vancouver, British Columbia Canada
¹¹⁷ The Hospital for Sick Children, Toronto, Canada
¹¹⁸ Centre for Global eHealth Innovation, Toronto, Canada
¹¹⁹ University Health Network, Toronto, Canada
¹²⁰ Division of Pediatric Rheumatology, Department of Pediatrics, University of Minnesota Masonic Children’s Hospital, Minneapolis, MN USA
¹²¹ Clinical and Translational Sciences Institute, University of Minnesota, Minneapolis, MN USA
¹²² Pediatric Rheumatology, Cohen Children’s Medical Center, New York, NY 11040 USA
¹²³ Pediatrics, Flushing Hospital Medical Center, New York, NY 11355 USA
¹²⁴ University of Chicago Medicine Comer Children’s Hospital, Chicago, IL USA
¹²⁵ Medical College of WI, Milwaukee, WI USA
¹²⁶ National Outcomes Center, Milwaukee, WI USA
¹²⁷ Children’s Hospital of Wisconsin, Milwaukee, WI USA
¹²⁸ Johns Hopkins Children’s Hospital, Baltimore, MD USA
¹²⁹ Northwestern University, Evanston, IL USA
¹³⁰ University of California San Francisco, San Francisco, CA USA
¹³¹ University of Wisconsin-Milwaukee, Milwaukee, WI USA
¹³² Medical College of Wisconsin, Milwaukee, WI USA
¹³³ Parent of Patient, Milwaukee, WI USA

^# Contributed equally.

PMID: 27409414
PMCID: PMC4943514
DOI: 10.1186/s12969-016-0098-0

Abstract

P1 Serologic evidence of gut-driven systemic inflammation in juvenile idiopathic arthritis

Lampros Fotis, Nur Shaikh, Kevin Baszis, Anthony French, Phillip Tarr

P2 Oral health and anti-citrullinated peptide antibodies (ACPA) in juvenile idiopathic arthritis

Sriharsha Grevich, Peggy Lee, Sarah Ringold, Brian Leroux, Hannah Leahey, Megan Yuasa, Jessica Foster, Jeremy Sokolove, Lauren Lahey, William Robinson, Joshua Newsom, Anne Stevens

P3 Novel autoantigens for endothelial cell antibodies in pediatric rheumatic diseases identified by proteomics

Rie Karasawa, Mayumi Tamaki, Megumi Tanaka, Toshiko Sato, Kazuo Yudoh, James N. Jarvis

P4 Transcriptional profiling reveals monocyte signature associated with JIA patient poor response to methotrexate

Halima Moncrieffe, Mark F. Bennett, Monica Tsoras, Lorie Luyrink, Huan Xu, Sampath Prahalad, Paula Morris, Jason Dare, Peter A. Nigrovic, Margalit Rosenkranz, Mara Becker, Kathleen M. O’Neil, Thomas Griffin, Daniel J. Lovell, Alexei A. Grom, Mario Medvedovic, Susan D. Thompson

P5 A multi-dimensional genomic map for polyarticular juvenile idiopathic arthritis

Lisha Zhu, Kaiyu Jiang, Laiping Wong, Michael J Buck, Yanmin Chen, Halima Moncrieffe, Laura Brungs, Tao Liu, Ting Wang, James N Jarvis

P6 Tocilizumab for treatment of children with refractory JIA

Khaled Alsaeid, Jasim Alfailakawi, Hamid Alenezi, Hazim Alsaeed

P7 Clinical characteristics of the initial patients enrolled in the Childhood Arthritis and Rheumatology Research Alliance (CARRA) Registry

Tim Beukelman, Marc Natter, Norm Ilowite, Kelly Mieszkalski, Grendel Burrell, Brian Best, Helen Bristow, Shannon Carr, Anne Dennos, Rachel Kaufmann, Yukiko Kimura, Laura Schanberg

P8 Comparative performance of small and large clinical centers in a comprehensive pediatric rheumatology disease registry

Peter R Blier

P9 Clinical characteristics of children with membranous lupus nephritis: The Childhood Arthritis and Rheumatology Research Alliance Legacy Registry

Alexis Boneparth, Scott E. Wenderfer, L. Nandini Moorthy, Suhas M. Radhakrishna, Anna Carmela P. Sagcal-Gironella, Emily von Scheven

P10 Rituximab use in pediatric lupus anticoagulant hypoprothrombinemia syndrome - a two center experience

Kader Cetin Gedik, Salma Siddique, Cassyanne L. Aguiar, Doruk Erkan

P11 Predictors of complementary and alternative medicine use and response in children with musculoskeletal conditions

Ezra Cohen, Yvonne Lee, Michelle Dossett, Darshan Mehta, Roger Davis

P12 Comparison of pediatric rheumatology and nephrology survey results for the treatment of refractory proliferative lupus nephritis and renal flare in juvenile SLE

Mileka Gilbert, Beatrice Goilav, Esra Meidan, Joyce Hsu, Alexis Boneparth, Anabelle Chua, Stacy Ardoin, Scott E. Wenderfer, Emily Von Scheven, Natasha M. Ruth

P13 Transitioning lupus patients from pediatric to adult rheumatology

Joyce Hui-Yuen, Kader Cetin Gedik, Liza Bermudez, Ashlea Cook, Lisa Imundo, Amy Starr, Andrew Eichenfield, Anca Askanase

P14 The systemic juvenile idiopathic arthritis cohort of the Childhood Arthritis & Rheumatology Research Alliance Registry

Ginger Janow, Laura E. Schanberg, Soko Setoguchi, Victor Hasselblad, Elizabeth D. Mellins, Rayfel Schneider, Yukiko Kimura, The CARRA Legacy Registry Investigators

P15 Results of the pilot study of the Childhood Arthritis and Rheumatology Research Alliance (CARRA) consensus treatment plans for new-onset systemic juvenile idiopathic arthritis

Yukiko Kimura, Sriharsha Grevich, Timothy Beukelman, Esi Morgan, T Brent Graham, Maria Ibarra, Yonit Sterba Ruas, Marisa Klein-Gitelman, Karen Onel, Sampath Prahalad, Marilynn Punaro, Sarah Ringold, Dana Toib, Heather Van Mater, Jennifer E. Weiss, Pamela F. Weiss, Kelly Mieszkalski, Laura E. Schanberg

P16 A systemic review of pain relief modalities in juvenile idiopathic arthritis: First step in developing a novel decision support intervention

Timothy S. H. Kwok, Jacinthe Bisaillon, Christine Smith, Lucie Brosseau, Jennifer Stinson, Adam M. Huber, Ciaran M. Duffy, Karine Toupin April

P17 Barriers and facilitators to care retention for pediatric systemic lupus erythematous patients in South Africa: A qualitative study

Laura B Lewandowski, Christiaan Scott

P18 Evaluating the feasibility of conducting comparative effectiveness studies in juvenile Localized Scleroderma (jLS)

Suzanne C. Li, Kathryn S. Torok, C. Egla Rabinovich, Sandy D. Hong, Mara L Becker, Fatma Dedeoglu, Maria F. Ibarra, Polly J Ferguson, Rob C. Fuhbrigge, Katie G. Stewart, Elena Pope, Ronald M. Laxer, Thomas G. Mason, Gloria C. Higgins, Xiaohu Li, Marilynn G. Punaro, George Tomlinson, Eleanor Pullenayegum, John Matelski, Laura Schanberg, Brian M. Feldman

P19 Tonsillar histology in patients with periodic fever, aphthous stomatitis, pharyngitis, adenitis (PFAPA) syndrome

Kalpana Manthiram, Hernan Correa, Kathryn Edwards

P20 Clinical course of juvenile dermatomyositis presenting as skin predominant disease

Edward J. Oberle, Michelle Bayer, Dominic O. Co, Hatice Ezgi Baris, Yvonne Chiu, Adam Huber, Susan Kim

P21 A Survey of musculoskeletal ultrasound practices of pediatric rheumatologists in North America

Edward J Oberle, Timothy Beukelman

P22 Assessment, classification and treatment of calcinosis as a complication of juvenile dermatomyositis: A survey of pediatric rheumatologists by the Childhood Arthritis and Rheumatology Research Alliance

Amir B. Orandi, Kevin W. Baszis, Vikas Dharnidharka, Mark F. Hoeltzel, for the CARRA JDM Committee

P23 CARRA dermatomyositis CTP pilot study

Ann Reed, Adam Huber, George Tomlinson, Eleanor Pullenayegum, John Matelski, Y. Ingrid Goh, Laura Schanberg, Brian M. Feldman

P24 Unexpectedly high incidences and prolonged disease activity in children with chronic non-bacterial osteomyelitis (CNO) as compared to bacterial osteomyelitis

Anja Schnabel, Ursula Range, Gabriele Hahn, Timo Siepmann, Reinhard Berner, Christian Michael Hedrich

P25 Juvenile systemic sclerosis cohort within the Childhood Arthritis and Rheumatology Research Alliance (CARRA) Legacy Registry: Follow up characteristics

Brandi Stevens, Kathryn S. Torok, Suzanne Li, Nicole Hershey, Megan Curran, Gloria Higgins, Katharine Moore, Egla Rabinovich, Anne M. Stevens, for the CARRA Registry Investigators

P26 Development and usability testing of an iPad and desktop psycho-educational game for children with Juvenile Idiopathic Arthritis and their parents

Jennifer Stinson, Mark Connelly, Adam Huber, Nadia Luca, Lynn Spiegel, Argerie Tsimicalis, Stephanie Luca, Naweed Tajuddin, Roberta Berard, Julia Barsalou, Sarah Campillo, Paul Dancey, Ciaran Duffy, Brian Feldman, Nicole Johnson, Patrick McGrath, Natalie Shiff, Shirley Tse, Lori Tucker, Charles Victor

P27 iCanCope^TM: User-centred design and development of a smartphone app to support self-management for youth with arthritis pain

Jennifer Stinson, Chitra Lalloo, Lauren Harris, Joseph Cafazzo, Lynn Spiegel, Brian Feldman, Nadia Luca, Ronald Laxer

P28 Accessing pediatric rheumatology care: Despite barriers, few parents prefer telemedicine

Danielle R. Bullock, Richard K. Vehe, Lei Zhang, Colleen K. Correll¹

P29 Exploration of factors contributing to time to achieve clinically inactive disease (CID) in juvenile idiopathic arthritis (JIA): A preliminary report

Suhas Ganguli, Max Shenberger, Ritesh Korumilli, Beth Gottlieb

P30 Pediatric rheumatology referral patterns: Presenting complaints of new patients at a large, urban academic center

Martha Rodriguez, Deirdre de Ranieri, Karen Onel, Linda Wagner-Weiner, Melissa Tesher

P31 Quality improvement (QI) initiatives in childhood systemic lupus erythematosus (cSLE)

Elizabeth Roth Wojcicki, Kristyn L. Maletta, Dominic O. Co, Marsha Malloy, Sarah Thomson, Judyann C. Olson

P32 Proliferative lupus nephritis in juvenile SLE: Support from the pediatric nephrology community for the definitions of responsiveness and flare in the 2012 consensus treatment plans

Scott E. Wenderfer, Mileka Gilbert, Joyce Hsu, Sangeeta Sule, Tamar B. Rubinstein, Beatrice Goilav, Daryl M. Okamura, Annabelle Chua, Laurence A. Greenbaum, Jerome C. Lane, Emily von Scheven, Stacy P. Ardoin, Natasha M. Ruth

P33 The steroid taper app: Making of a mobile app

Jennifer M. P. Woo, Marsha M. Malloy, James A. Jegers, Dustin J. Hahn, Mary K. Hintermeyer, Stacey M. Martinetti, Gretchen R. Heckel, Elizabeth L. Roth-Wojcicki, Dominic O. Co

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Proceedings of the 2016 Childhood Arthritis and Rheumatology Research Alliance (CARRA) Scientific Meeting : Toronto, Canada. 14-17 April 2016

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Proceedings of the 2016 Childhood Arthritis and Rheumatology Research Alliance (CARRA) Scientific Meeting : Toronto, Canada. 14-17 April 2016

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Grants and funding

LinkOut - more resources

Full Text Sources

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Research Materials

Miscellaneous