[Psychosocial strategies to strengthen the coping with Parkinson's disease: Perspectives from patients, family carers and healthcare professionals]
- PMID: 27566906
- PMCID: PMC6876005
- DOI: 10.1016/j.aprim.2016.06.001
[Psychosocial strategies to strengthen the coping with Parkinson's disease: Perspectives from patients, family carers and healthcare professionals]
Abstract
Objective: To explore the main psychosocial aspects which have influence on the coping with the disease in patients with Parkinson's disease (PD) and their family carers.
Design: An exploratory qualitative study which constitutes the second phase of a mixed-methods project.
Setting: Multicenter study carried out in Navarre in 2014 in collaboration with Primary Care of Navarre Service of Health-Osasunbidea, Clínica Universidad de Navarra and Navarre Association of Parkinson's patients.
Participants: A total of 21 participants: 9 people with PD, 7 family carers and 5 healthcare professionals.
Method: Participants were selected through purposive sampling. Focus groups were conducted until a suitable saturation data was achieved. Transcriptions were analysed by 2 researchers through a content analysis.
Results: Three aspects that affected how patients and family carers coped with PD were identified: features of the clinical practice; family environment, and disease's acceptance. Taking account of these findings, some strategies which could foster these aspects from primary healthcare are suggested in order to improve the adjustment to the disease in patients and family carers.
Conclusions: The healthcare in people with PD should have an integral approach that tackle the symptoms control in patients and also deal with psychosocial aspects that influence on the coping with the disease, in patients and family carers.
Objetivo: Explorar los principales aspectos psicosociales que influyen en el afrontamiento de la enfermedad de los pacientes con enfermedad de Parkinson (EP) y sus familiares cuidadores.
Diseño: Estudio cualitativo exploratorio que constituye la segunda fase de un proyecto de metodología combinada.
Emplazamiento: Estudio multicéntrico realizado en la Comunidad Autónoma de Navarra en 2014 con la colaboración de Atención Primaria del Servicio Navarro de Salud-Osasunbidea, la Clínica Universidad de Navarra y la Asociación Navarra de Parkinson.
Participantes: Un total de 21 participantes: 9 personas con EP, 7 familiares cuidadores y 5 profesionales sociosanitarios.
Método: Los participantes fueron seleccionados mediante muestreo opinático. Se realizaron grupos focales hasta que se consideró adecuada la saturación de los datos. Las transcripciones fueron analizadas por 2 investigadores a través de un análisis de contenido.
Resultados: Se identificaron 3 aspectos que influían en cómo pacientes y familiares afrontaban la EP: funcionalidad de la atención sanitaria; entorno familiar, y aceptación de la enfermedad. Considerando estos resultados, se proponen estrategias que podrían promover estos aspectos desde atención primaria, para así mejorar la adaptación a esta enfermedad en pacientes y en sus familiares cuidadores.
Conclusiones: La atención sociosanitaria de las personas con EP debería adoptar un enfoque integral que aborde el control de los síntomas del paciente y que responda también a los aspectos psicosociales que influyen en el afrontamiento de la enfermedad, tanto en los pacientes como en sus familiares cuidadores.
Keywords: Afrontamiento; Chronic Care Model; Chronic illness; Cope; Cuidadores familiares; Enfermedades crónicas; Family carers; Focus groups; Grupos focales; Metodología combinada; Mixed-methods; Modelo de Atención a Crónicos.
Copyright © 2016 Elsevier España, S.L.U. All rights reserved.
Figures
Similar articles
-
Core elements to understand and improve coping with Parkinson's disease in patients and family carers: A focus group study.J Adv Nurs. 2017 Nov;73(11):2609-2621. doi: 10.1111/jan.13335. Epub 2017 Jun 9. J Adv Nurs. 2017. PMID: 28494098
-
Palliative care for Parkinson's disease: Patient and carer's perspectives explored through qualitative interview.Palliat Med. 2017 Jul;31(7):634-641. doi: 10.1177/0269216316669922. Epub 2016 Sep 28. Palliat Med. 2017. PMID: 27683476
-
Perspectives of people with Parkinson's disease and family carers about disease management in community settings: A cross-country qualitative study.J Clin Nurs. 2023 Aug;32(15-16):5201-5218. doi: 10.1111/jocn.16636. Epub 2023 Feb 2. J Clin Nurs. 2023. PMID: 36732059
-
[Nursing home placement of people with dementia: a secondary analysis of qualitative data and literature review on perspectives of informal caregivers and healthcare professionals].Pflege. 2018 Jun;31(3):155-166. doi: 10.1024/1012-5302/a000611. Epub 2018 Mar 8. Pflege. 2018. PMID: 29514552 Review. German.
-
'Striving for normality' when coping with Parkinson's disease in everyday life: A metasynthesis.Int J Nurs Stud. 2021 Jun;118:103923. doi: 10.1016/j.ijnurstu.2021.103923. Epub 2021 Mar 4. Int J Nurs Stud. 2021. PMID: 33813086 Review.
Cited by
-
Spiritual Dimension in Neurological and Neurodegenerative Diseases: A Systematic Mapping Review.J Relig Health. 2023 Dec;62(6):4158-4176. doi: 10.1007/s10943-022-01683-6. Epub 2022 Oct 15. J Relig Health. 2023. PMID: 36243837 Free PMC article.
-
Implementation of a multidisciplinary psychoeducational intervention for Parkinson's disease patients and carers in the community: study protocol.BMC Fam Pract. 2018 Apr 5;19(1):45. doi: 10.1186/s12875-018-0730-9. BMC Fam Pract. 2018. PMID: 29621985 Free PMC article. Clinical Trial.
-
[Family adherence in serious mental disorder].Aten Primaria. 2018 Nov;50(9):519-526. doi: 10.1016/j.aprim.2017.06.010. Epub 2017 Oct 9. Aten Primaria. 2018. PMID: 29032844 Free PMC article. Spanish.
-
[Parkinson's disease: a bibliographic update of psychosocial aspects].Rev Fac Cien Med Univ Nac Cordoba. 2022 Jun 6;79(2):181-187. doi: 10.31053/1853.0605.v79.n2.33610. Rev Fac Cien Med Univ Nac Cordoba. 2022. PMID: 35700462 Free PMC article. Review. Spanish.
References
-
- García-Goñi M., Hernádez-Quevedo C., Nuño-Solinís R., Paolucci F. Pathways towards chronic care-focused healthcare systems: Evidence from Spain. Health Policy. 2012;108:236–245. - PubMed
-
- Ministerio de Sanidad, Servicios Sociales e Igualdad. Estrategia para el Abordaje de la Cronicidad en el Sistema Nacional de Salud. Sanidad 2012 [consultado 10 Mar 2016]. Disponible en: http://www.msps.es/organizacion/sns/planCalidadSNS/pdf/ESTRATEGIA_ABORDA...
-
- Wirdefeldt K., Adami H.O., Cole P., Trichopoulos D., Mandel J. Epidemiology and etiology of Parkinson's disease: A review of the evidence. Eur J Epidemiol. 2011;26(Suppl 1):S1–S58. - PubMed
-
- Olesen J., Gustavsson A., Svensson M., Wittchen H.U., Jönsson B., on behalf of the CDBE2010 study group and the European Brain Council The economic cost of brain disorders in Europe. Eur J Neurol. 2012;19:155–162. - PubMed
-
- Haahr A., Kirkevold M., Hall E.O., Østergaard K. Living with advanced Parkinson's disease: A constant struggle with unpredictability. J Adv Nurs. 2011;67:408–417. - PubMed
Publication types
MeSH terms
LinkOut - more resources
Full Text Sources
Other Literature Sources
Medical