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Comment
. 2016 Oct;16(10):50-2.
doi: 10.1080/15265161.2016.1214326.

Deliberation to Promote Shared Sovereignty in Health Research: Four Questions to Clarify Goals, Methods, and Scope

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Comment

Deliberation to Promote Shared Sovereignty in Health Research: Four Questions to Clarify Goals, Methods, and Scope

Jantina de Vries et al. Am J Bioeth. 2016 Oct.
No abstract available

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References

    1. Burgess MM. From ‘trust us’ to participatory governance: Deliberative publics and science policy. Public Understanding of Science. 2014;23(1):48–52. doi: 10.1177/0963662512472160. - DOI - PubMed
    1. Campbell M, Susser E, de Vries J, Baldinger A, Sibeko G, Mndini M, … Stein D. Exploring researchers’ experiences of working with a researcher-driven, population-specific community advisory board in a South African schizophrenia genomics study. BMC Medical Ethics. 2015;16(1):45. - PMC - PubMed
    1. Longstaff H, Burgess MM. Recruiting for representation in public deliberation on the ethics of biobanks. Public Understanding of Science. 2010;19(2):212–224. doi: 10.1177/0963662508097626. - DOI - PubMed
    1. Marsh V, Kombe F, Fitzpatrick R, Molyneux S, Parker M. Managing misaligned paternity findings in research including sickle cell disease screening in Kenya: ‘Consulting communities’ to inform policy. Social Science & Medicine. 2013;96(0):192–199. http://dx.doi.org/10.1016/j.socscimed.2013.07.028. - DOI - PMC - PubMed
    1. Marsh V, Kombe F, Fitzpatrick R, Williams TN, Parker M, Molyneux S. Consulting communities on feedback of genetic findings in international health research: sharing sickle cell disease and carrier information in coastal Kenya. BMC Medical Ethics. 2013;14(Journal Article) doi: 10.1186/1472-6939-14-41. 41-6939-6914-6941. - DOI - PMC - PubMed

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