Impact of Diagnosis Disclosure on Adolescents with Borderline Personality Disorder
- PMID: 27924148
- PMCID: PMC5130091
Impact of Diagnosis Disclosure on Adolescents with Borderline Personality Disorder
Abstract
Objective: Establishing a diagnosis of Borderline Personality Disorder (BPD) in adolescents is often met with controversy, in part, due to potential stigmatizing effects. We wished to explore the adolescent patient experience of being diagnosed with BPD.
Method: The Impact of Diagnosis Scale (IODS) is a self-report measure we developed with questions targeting patients' subjective experience of receiving a diagnosis of BPD. The IODS was administered to 23 adolescents approximately one month after a diagnosis of BPD had been disclosed to them.
Results: Twenty-one participants had analyzable data. The internal consistency of the measure demonstrated Cronbach's alpha of 0.66. We found wide variability in responses. Patients tended to view the diagnosis as an accurate representation of their symptoms.
Conclusion: The IODS represents a novel means by which clinicians might better appreciate how disclosing the diagnosis of BPD may impact a patient's understanding of one's difficulties.
Objectif: Établir un diagnostic de trouble de la personnalité limite (TPL) chez les adolescents soulève souvent la controverse, en partie à cause des effets de la stigmatisation potentielle. Nous avons voulu explorer l’expérience d’un patient adolescent qui reçoit un diagnostic de TPL.
Méthode: L’échelle d’impact du diagnostic (EID) est une mesure d’autoévaluation que nous avons élaborée avec des questions ciblant l’expérience subjective des patients qui reçoivent un diagnostic de TPL. L’EID a été administrée à 23 adolescents environ un mois après qu’on leur a divulgué un diagnostic de TPL.
Résultats: Vingt-et-un participants avaient des données analysables. La cohérence interne de la mesure démontrait un alpha de Cronbach de 0,66. Nous avons constaté une grande variabilité des réponses. Les patients avaient tendance à voir le diagnostic comme étant une représentation exacte de leurs symptômes.
Conclusion: L’EID représente un nouveau moyen grâce auquel les cliniciens pourraient mieux apprécier comment la divulgation d’un diagnostic de TPL peut influer sur l’aptitude du patient à comprendre ses difficultés.
Keywords: adolescent; borderline personality disorder; diagnosis; disclosure; stigma.
Similar articles
-
Consumer perspective from people with a diagnosis of Borderline Personality Disorder (BPD) on BPD management-How are the Australian NHMRC BPD guidelines faring in practice?J Psychiatr Ment Health Nurs. 2021 Aug;28(4):670-681. doi: 10.1111/jpm.12714. Epub 2020 Nov 30. J Psychiatr Ment Health Nurs. 2021. PMID: 33202081 Free PMC article.
-
Zanarini Rating Scale for Borderline Personality Disorder (ZAN-BPD): a continuous measure of DSM-IV borderline psychopathology.J Pers Disord. 2003 Jun;17(3):233-42. doi: 10.1521/pedi.17.3.233.22147. J Pers Disord. 2003. PMID: 12839102
-
Disclosure of a diagnosis of borderline personality disorder.J Psychiatr Pract. 2004 May;10(3):170-6. doi: 10.1097/00131746-200405000-00005. J Psychiatr Pract. 2004. PMID: 15330223 Review.
-
Borderline personality disorder in adolescents: evidence in support of the Childhood Interview for DSM-IV Borderline Personality Disorder in a sample of adolescent inpatients.Compr Psychiatry. 2012 Aug;53(6):765-74. doi: 10.1016/j.comppsych.2011.12.003. Epub 2012 Jan 31. Compr Psychiatry. 2012. PMID: 22300904
-
Perspectives of crisis intervention for people diagnosed with "borderline personality disorder": An integrative review.J Psychiatr Ment Health Nurs. 2021 Apr;28(2):208-236. doi: 10.1111/jpm.12637. Epub 2020 May 5. J Psychiatr Ment Health Nurs. 2021. PMID: 32367638 Review.
Cited by
-
"I've Spent My Whole Life Striving to Be Normal": Internalized Stigma and Perceived Impact of Diagnosis in Autistic Adults.Autism Adulthood. 2023 Dec 1;5(4):423-436. doi: 10.1089/aut.2022.0066. Epub 2023 Dec 12. Autism Adulthood. 2023. PMID: 38116050 Free PMC article.
-
Consumer perspective from people with a diagnosis of Borderline Personality Disorder (BPD) on BPD management-How are the Australian NHMRC BPD guidelines faring in practice?J Psychiatr Ment Health Nurs. 2021 Aug;28(4):670-681. doi: 10.1111/jpm.12714. Epub 2020 Nov 30. J Psychiatr Ment Health Nurs. 2021. PMID: 33202081 Free PMC article.
-
To love and work: A longitudinal study of everyday life factors in recovery from borderline personality disorder.Personal Ment Health. 2022 May;16(2):138-154. doi: 10.1002/pmh.1547. Epub 2022 May 10. Personal Ment Health. 2022. PMID: 35538561 Free PMC article.
-
Borderline Personality Disorder: Updates in a Postpandemic World.Focus (Am Psychiatr Publ). 2022 Oct;20(4):337-352. doi: 10.1176/appi.focus.20220057. Epub 2022 Oct 25. Focus (Am Psychiatr Publ). 2022. PMID: 37200886 Free PMC article. Review.
-
"The Single Most Important Thing That Has Happened to Me in My Life": Development of the Impact of Diagnosis Scale-Preliminary Revision.Autism Adulthood. 2020 Mar 1;2(1):34-41. doi: 10.1089/aut.2019.0059. Epub 2020 Mar 11. Autism Adulthood. 2020. PMID: 36600983 Free PMC article.
References
-
- American Psychiatric Association. Diagnostic and statistical manual of mental disorders. 5th ed. Washington DC: 2013.
-
- Ball JS, Links PS. Borderline personality disorder and childhood trauma: Evidence for a causal relationship. Current Psychiatry Reports. 2009;11(1):63–68. - PubMed
LinkOut - more resources
Full Text Sources
Miscellaneous