Dialysis in Children and Adolescents: The Pediatric Nephrology Perspective

Abstract

The care of children with end-stage renal disease (ESRD) is highly specialized and often poorly understood by nonpediatric providers and facility/institution administrators. As such, this position paper has been created to offer provider, facility, and institutional guidance regarding the components of care necessary for children receiving dialysis. Key differences between adult and pediatric dialysis units are highlighted. Responsibilities and expectations of the members of the interdisciplinary dialysis team are outlined as they pertain specifically to the care of pediatric dialysis patients. Physical and staffing requirements of the dialysis facility are reviewed, again focusing on unique needs and challenges faced by the pediatric dialysis care team. Among these, vascular access options and proper planning of ESRD care are underscored. Pediatric quality-of-life metrics differ significantly from adult quality variables, and proper tools for assessment must be used. Endorsed by the Council of the American Society of Pediatric Nephrology (ASPN), this position paper serves as a reference tool for the provision of care to pediatric patients with ESRD.

Keywords: ASPN position paper; American Society of Pediatric Nephrology (ASPN); Pediatric nephrology; adolescents; children; dialysis unit staffing; end-stage renal disease (ESRD); hemodialysis (HD); infants; interdisciplinary dialysis team (IDT); peritoneal dialysis (PD); practice recommendations; young person.