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. 2017 Feb-Mar;60(2):138-154.
doi: 10.1080/01634372.2016.1272075. Epub 2016 Dec 20.

Dementia Caregivers and Live Discharge from Hospice: What Happens When Hospice Leaves?

Stephanie P Wladkowski  1
Affiliations

Dementia Caregivers and Live Discharge from Hospice: What Happens When Hospice Leaves?

Stephanie P Wladkowski. J Gerontol Soc Work. 2017 Feb-Mar.

Abstract

Hospice offers holistic support for individuals living with terminal illness and their caregivers. Some individuals receiving hospice services experience a slower decline in health as than expected, resulting in a 'live discharge' from hospice. A live discharge affects both patient and caregiver(s).The current study (N=24) explored the experiences of caregivers of adults with dementia who experienced a live discharge from hospice. Findings emphasize the comprehensive services covered under the Medicare Hospice benefit and those lost after a live discharge. Implications for social workers supporting caregivers are discussed, including the need to view the patient-caregiver unit during a live discharge.

Keywords: Caregiving; dementia; hospice care/palliative care; live discharge.

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