End of Life Care for Infants, Children and Young People with Life-Limiting Conditions: Planning and Management
- PMID: 28045476
- Bookshelf ID: NBK402430
End of Life Care for Infants, Children and Young People with Life-Limiting Conditions: Planning and Management
Excerpt
This guideline covers the physical, emotional, social and spiritual elements of end of life care, and focuses on improving the child or young person’s quality of life and supporting their family and carers. There are, for instance, recommendations on managing distressing symptoms and providing care and bereavement support after death. Recommendations have also been made about how services should be delivered. The guideline is aimed at all providers of paediatric end of life care, whatever their level of practise, and also for children and young people with life-limiting conditions and their parents or carers.
The guideline covers children and young people with a life-limiting condition. It does not make recommendations for children or young people who die suddenly and unexpectedly (for example due to accidental death).
Copyright, National Institute for Health and Care Excellence, 2016.
Sections
- 1. Guideline summary
- 2. Introduction
- 3. Guideline development methodology
- 4. Providing information
- 5. Communication
- 6. Shared decision-making and Advance Care Planning
- 7. Provision of care
- 8. Support
- 9. Managing distressing symptoms
- 10. Managing hydration and nutrition
- 11. Recognising that a child or young person is likely to die within hours or days
- 12 References
- 13. Glossary and abbreviations
- 14. Appendices
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