Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2017 Mar;15(2):165-170.
doi: 10.1370/afm.2042.

The PCORI Engagement Rubric: Promising Practices for Partnering in Research

Susan Sheridan  1 , Suzanne Schrandt  1   2 , Laura Forsythe, Tandrea S Hilliard  3 , Kathryn A Paez  3 ; Advisory Panel on Patient Engagement (2013 inaugural panel)
Affiliations

The PCORI Engagement Rubric: Promising Practices for Partnering in Research

Susan Sheridan et al. Ann Fam Med. 2017 Mar.

Abstract

Purpose: Engaging patients, caregivers, and other health care stakeholders as partners in planning, conducting, and disseminating research is a promising way to improve clinical decision making and outcomes. Many researchers, patients, and other stakeholders, however, lack clarity about when and how to engage as partners within the clinical research process. To address the need for guidance on creating meaningful stakeholder partnerships in patient-centered clinical comparative effectiveness research, the Patient-Centered Outcomes Research Institute (PCORI) developed the PCORI Engagement Rubric (Rubric).

Methods: PCORI developed the Rubric drawing from a synthesis of the literature, a qualitative study with patients, a targeted review of engagement plans from PCORI-funded project applications, and a moderated discussion and review with PCORI's Advisory Panel on Patient Engagement.

Results: The Rubric provides a framework for operationalizing engagement to incorporate patients and other stakeholders in all phases of research. It includes: principles of engagement; definitions of stakeholder types; key considerations for planning, conducting, and disseminating engaged research; potential engagement activities; and examples of promising practices from PCORI-funded projects.

Conclusions: PCORI designed the Rubric to illustrate opportunities for engagement to researchers interested in applying for PCORI funding and to patients and other stakeholders interested in greater involvement in research. By encouraging PCORI applicants, awardees, and others to apply the rubric, PCORI hopes to shift the research paradigm from one of conducting research on patients as subjects to a pursuit carried out in collaboration with patients and other stakeholders to better reflect the values, preferences, and outcomes that matter to the patient community.

Keywords: patient engagement; patient outcomes; patient-centered.

PubMed Disclaimer

Figures

Figure 1
Figure 1
PCORI guidance for patient-centeredness and engagement in research. Note: The criteria have been refined over time. This figure reflects the PCORI criteria as of publication of this manuscript.
Figure 2
Figure 2
PCOR engagement principles.
Figure 3
Figure 3
PCORI Engagement Rubric.
See this image and copyright information in PMC

References

    1. Domecq JP, Prutsky G, Elraiyah T, et al. Patient engagement in research: A systematic review. BMC Health Serv Res. [Online] 2014;14:89 http://bmchealthservres.biomedcentral.com/articles/10.1186/1472-6963-14-89 Accessed Feb 21, 2017. - DOI - PMC - PubMed
    1. Esmail L, Moore E, Rein A. Evaluating patient and stakeholder engagement in research: moving from theory to practice. J Comp Eff Res. 2015;4(2):133–145. - PubMed
    1. Brett J, Staniszewska S, Mockford C, et al. Mapping the impact of patient and public involvement on health and social care research: a systematic review. Health Expect. 2014;17(5):637–650. - PMC - PubMed
    1. Compilation of Patient Protection and Affordable Care Act: Extracted sections concerning patient-centered outcomes research and the authorization of the Patient-Centered Outcomes Research Institute (PCORI). Amended May 1, 2010. Subtitle D of Title VI-Sec.,6301. Enacted March 23, 2010. http://www.pcori.org/sites/default/files/PCORI_Authorizing_Legislation.pdf Accessed Nov 1, 2016.
    1. Vetter J. Introduction: lay participation in the history of scientific observation. Sci Context. 2011;24(2):127–141. - PubMed

LinkOut - more resources