Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2017 Aug;11(4):486-497.
doi: 10.1007/s11764-017-0607-2. Epub 2017 Apr 3.

Cancer survivorship monitoring systems for the collection of patient-reported outcomes: a systematic narrative review of international approaches

N Corsini  1 , J Fish  2   3 , I Ramsey  2 , G Sharplin  2 , I Flight  2   3 , R Damarell  3 , B Wiggins  2 , C Wilson  2   3 , D Roder  4 , M Eckert  2   4
Affiliations

Cancer survivorship monitoring systems for the collection of patient-reported outcomes: a systematic narrative review of international approaches

N Corsini et al. J Cancer Surviv. 2017 Aug.

Abstract

Purpose: This systematic narrative review describes and compares the development and operational approaches of monitoring systems without a clinical care component that collect patient-reported outcome (PRO) data from cancer survivors.

Methods: Searches were conducted using Medline, PubMed, PsycINFO, the Cochrane Library, CINAHL, Scopus, Joanna Briggs Institute EBP Database and Google Scholar (Advanced). Sources of grey literature and websites of relevant organisations were also searched for relevant published and unpublished material. Articles were included if they described the development (including piloting) of monitoring systems with ongoing recruitment that collect PRO at more than one time point, from 6 months post-diagnosis onward.

Results: The initial searches returned 7290 unique citations. After screening titles and abstracts, 39 full-text articles were retrieved for more detailed examination. Eleven articles were included in the review, representing seven international monitoring systems. Systems varied in their scope, implementation process, governance and administration, recruitment and data collection, consent rates, PRO collection, use of PRO and translation strategies.

Conclusions: The most suitable approach for setting-up and implementing a monitoring system for ongoing surveillance will differ depending on the unique requirements, aims and level of resourcing available within a particular context. Better specification and consideration of how PRO data will be used, for what purpose, and by whom, is required to inform effective translational strategies to improve outcomes for cancer survivors.

Implications for cancer survivors: The findings from this review may inform the future development of survivorship monitoring systems in varied environments, which in turn may improve practices that lead to better outcomes for survivors.

Keywords: Cancer survivorship; Oncology; Patient-reported outcomes; Quality of life; Registry; Surveillance.

PubMed Disclaimer

References

    1. Int J Cancer. 2015 Mar 1;136(5):E359-86 - PubMed
    1. J Nutr. 2002 Nov;132(11 Suppl):3494S-3503S - PubMed
    1. J Chronic Dis. 1987;40(10):939-42 - PubMed
    1. J Cancer Surviv. 2007 Mar;1(1):49-63 - PubMed
    1. J Med Internet Res. 2013 Oct 25;15(10):e230 - PubMed

Publication types

LinkOut - more resources