Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2017 Sep;12(3):e12153.
doi: 10.1111/opn.12153. Epub 2017 Apr 18.

"Little things matter!" Exploring the perspectives of patients with dementia about the hospital environment

Lillian Hung  1 , Alison Phinney  1 , Habib Chaudhury  2 , Paddy Rodney  1 , Jenifer Tabamo  3 , Doris Bohl  3
Affiliations

"Little things matter!" Exploring the perspectives of patients with dementia about the hospital environment

Lillian Hung et al. Int J Older People Nurs. 2017 Sep.

Abstract

Background: Recognising demographic changes and importance of the environment in influencing the care experience of patients with dementia, there is a need for developing the knowledge base to improve hospital environments. Involving patients in the development of the hospital environment can be a way to create more responsive services. To date, few studies have involved the direct voice of patients with dementia about their experiences of the hospital environment.

Design and method: Using an action research approach, we worked with patients with dementia and a team of interdisciplinary staff on a medical unit to improve dementia care. The insights provided by patients with dementia in the early phase shaped actions undertaken at the later stage to develop person-centred care within a medical ward. We used methods including go-along interviews, video recording and participant observation to enable rich data generation.

Aim: This study explores the perspectives of patients with dementia about the hospital environment.

Results: The participants indicated that a supportive hospital environment would need to be a place of enabling independence, a place of safety, a place of supporting social interactions and a place of respect.

Conclusions: Patient participants persuasively articulated the supportive and unsupportive elements in the environment that affected their well-being and care experiences. They provided useful insights and pointed out practical solutions for improvement. Action research offers patients not only opportunities to voice their opinion, but also possibilities to contribute to hospital service development.

Implications for practice: This is the first study that demonstrates the possibility of using go-along interviews and videoing with patients with dementia staying in a hospital for environmental redesign. Researchers, hospital leaders and designers should further explore strategies to best support the involvement of patients with dementia in design and redesign of hospital environments.

Keywords: action research; dementia; person-centred practice; practice development.

PubMed Disclaimer

Figures

Figure 1
Figure 1
Key aspects of a supportive hospital environment
See this image and copyright information in PMC

References

    1. Andrews, J. (2013). A guide to creating a dementia‐friendly ward. Nursing Times, 109(8), 20–21. - PubMed
    1. Bate, P. , & Robert, G. (2007). Bringing user experience to healthcare improvement: The concepts, methods and practices of experience‐based design. Oxford: Radcliffe Publishing.
    1. Black, B. , Rabins, P. , Sugarman, J. , & Karlawish, J. (2010). Seeking assent and respecting dissent in dementia research. Nursing Older People, 22(3), 14. - PMC - PubMed
    1. Bradbury, H. (2015). The Sage handbook of action research. Boston: Sage.
    1. Bromley, E. (2012). Building patient‐centeredness: Hospital design as an interpretive act. Social Science & Medicine (1982), 75(6), 1057–1066. doi:10.1016/j.socscimed.2012.04.037 - DOI - PubMed

LinkOut - more resources