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. 2018 Jan;22(1):297-307.
doi: 10.1007/s10461-017-1786-6.

Self-Management Strategies for Coping with Adverse Symptoms in Persons Living with HIV with HIV Associated Non-AIDS Conditions

Sarah Iribarren  1   2 , Karolynn Siegel  3 , Sabina Hirshfield  4 , Susan Olender  5 , Joachim Voss  6 , Joseph Krongold  1 , Heidi Luft  1 , Rebecca Schnall  7
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Self-Management Strategies for Coping with Adverse Symptoms in Persons Living with HIV with HIV Associated Non-AIDS Conditions

Sarah Iribarren et al. AIDS Behav. 2018 Jan.

Abstract

People living with HIV (PLWH) are living longer, but many are now affected by HIV-associated non-AIDS (HANA) conditions and their associated adverse symptoms. An online survey was conducted with 769 PLWH with HANA conditions in the US. Information was elicited on symptoms experienced, self-management strategies employed, and the helpfulness of these strategies. Open ended responses were collected for self-management strategies. A qualitative data analytic approach was used to organize the 4036 self-management strategies into thematic categories, with eight main categories emerging, including: taking medication, modifying activity, altering diet, seeking help, waiting, substance use, managing thoughts and attitudes, and altering the physical environment. Of the self-management strategy subcategories, social support was the most helpful self-management strategy with waiting/doing nothing being the least helpful approach. Findings can be used to inform the development of self-management interventions and to support health care professionals in recommending symptom self-management strategies to their patients.

Keywords: HANA conditions; HIV; Online survey; Self-management strategies; Symptoms.

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Conflict of interest statement

Conflict of Interest: The authors declare no conflict of interest.

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