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. 2017 May 11;15(1):98.
doi: 10.1186/s12955-017-0677-x.

Feasibility of the Participation and Activity Inventory for Children and Youth (PAI-CY) and Young Adults (PAI-YA) with a visual impairment: a pilot study

Ellen Bernadette Maria Elsman  1 , Ruth Marie Antoinette van Nispen  2 , Gerardus Hermanus Maria Bartholomeus van Rens  2   3
Affiliations

Feasibility of the Participation and Activity Inventory for Children and Youth (PAI-CY) and Young Adults (PAI-YA) with a visual impairment: a pilot study

Ellen Bernadette Maria Elsman et al. Health Qual Life Outcomes. .

Abstract

Background: Having a visual impairment affects quality of life, daily functioning and participation. To assess rehabilitation needs of visually impaired children and young adults, the Participation and Activity Inventory for Children and Youth (PAI-CY) and Young Adults (PAI-YA) were developed. The PAI-CY comprises four questionnaires for different age categories: 0-2 years, 3-6 years, 7-12 years and 13-17 years. This pilot study assesses the feasibility and acceptability of the PAI-CY and PAI-YA, and the relevance of the content of the questionnaires.

Methods: In addition to the regular admission procedure, the PAI-CY and PAI-YA were completed by 30 participants (six per questionnaire). For the PAI-CY, parents completed the questionnaire online prior to admission. From age 7 years onwards, children completed the questionnaire face-to-face with a rehabilitation professional during the admission procedure. Young adults completed the PAI-YA online. Subsequently, participants and professionals administered an evaluation form.

Results: Overall, 85% of the parents rated all aspects of the PAI-CY neutral to positive, whereas 100% of all children and young adults were neutral to positive on all aspects, except for the duration to complete. The main criticism of professionals was that they were unable to identify actual rehabilitation needs using the questionnaires. Minor adjustments were recommended for the content of questions.

Conclusions: Parents, children and young adults were mostly satisfied with the questionnaires, however, professionals suggested some changes. The adaptations made should improve satisfaction with content, clarification of questions, and satisfaction with the questionnaires in compiling a rehabilitation plan. Although face and content validity has been optimized, a larger field study is taking place to further develop and evaluate the questionnaires.

Keywords: Adolescents; Children; Participation and Activity Inventory (PAI); Pilot study; Visual impairment; Young adults.

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References

    1. Keunen JEE, Verezen CA, Imhof SM, Van Rens GHMB, Asselbergs MB, Limburg JJ. Toename in de vraag naar oogzorg in Nederland 2010–2020. Ned Tijdschr Geneeskd. 2011;155:A3461. - PubMed
    1. Boonstra N, Limburg H, Tijmes N, van Genderen M, Schuil J, van Nispen R. Changes in causes of low vision between 1988 and 2009 in a Dutch population of children. Acta Ophthalmol. 2012;90:277–286. doi: 10.1111/j.1755-3768.2011.02205.x. - DOI - PubMed
    1. Salminen AL, Karhula ME. Young persons with visual impairment: Challenges of participation. Scand J Occup Ther. 2014;21:267–276. doi: 10.3109/11038128.2014.899622. - DOI - PubMed
    1. Rainey L, Elsman EB, van Nispen RM, van Leeuwen LM, van Rens GH. Comprehending the impact of low vision on the lives of children and adolescents: a qualitative approach. Qual Life Res. 2016;25:2633–2643. doi: 10.1007/s11136-016-1292-8. - DOI - PMC - PubMed
    1. Elsman EBM, Van Rens GHMB, Van Nispen RMA. Impact of visual impairment on the lives of young adults in the Netherlands: a concept-mapping approach. Disabil Rehabil. 2016. doi:10.1080/09638288.2016.1236408. - PubMed

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