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. 2017 Oct;26(10):2851-2866.
doi: 10.1007/s11136-017-1588-3. Epub 2017 May 10.

Development of the life impact burn recovery evaluation (LIBRE) profile: assessing burn survivors' social participation

Lewis E Kazis  1 , Molly Marino  2 , Pengsheng Ni  3 , Marina Soley Bori  1 , Flor Amaya  1 , Emily Dore  1 , Colleen M Ryan  4   5   6 , Jeff C Schneider  5   7 , Vivian Shie  7 , Amy Acton  8 , Alan M Jette  3
Affiliations

Development of the life impact burn recovery evaluation (LIBRE) profile: assessing burn survivors' social participation

Lewis E Kazis et al. Qual Life Res. 2017 Oct.

Abstract

Purpose: Measuring the impact burn injuries have on social participation is integral to understanding and improving survivors' quality of life, yet there are no existing instruments that comprehensively measure the social participation of burn survivors. This project aimed to develop the Life Impact Burn Recovery Evaluation Profile (LIBRE), a patient-reported multidimensional assessment for understanding the social participation after burn injuries.

Methods: 192 questions representing multiple social participation areas were administered to a convenience sample of 601 burn survivors. Exploratory factor analysis and confirmatory factor analysis (CFA) were used to identify the underlying structure of the data. Using item response theory methods, a Graded Response Model was applied for each identified sub-domain. The resultant multidimensional LIBRE Profile can be administered via Computerized Adaptive Testing (CAT) or fixed short forms.

Results: The study sample included 54.7% women with a mean age of 44.6 (SD 15.9) years. The average time since burn injury was 15.4 years (0-74 years) and the average total body surface area burned was 40% (1-97%). The CFA indicated acceptable fit statistics (CFI range 0.913-0.977, TLI range 0.904-0.974, RMSEA range 0.06-0.096). The six unidimensional scales were named: relationships with family and friends, social interactions, social activities, work and employment, romantic relationships, and sexual relationships. The marginal reliability of the full item bank and CATs ranged from 0.84 to 0.93, with ceiling effects less than 15% for all scales.

Conclusions: The LIBRE Profile is a promising new measure of social participation following a burn injury that enables burn survivors and their care providers to measure social participation.

Keywords: Burns; Computerized adaptive test; Item response theory; Social reintegration.

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Conflict of interest statement

Conflicts of interests The authors declare that they have no competing interest.

Figures

Fig. 4
Fig. 4
Conceptual model for social participation for burn survivors
Fig. 5
Fig. 5
Examples of all dominant (a) and selected non-dominant (b) response category functioning
Fig. 1
Fig. 1
Hypothesized conceptual domains and final scales of the LIBRE Profile
Fig. 2
Fig. 2
a–f Distributions of the item threshold parameter and sample scores
Fig. 2
Fig. 2
a–f Distributions of the item threshold parameter and sample scores
Fig. 3
Fig. 3
a–f Score distribution and test information function
See this image and copyright information in PMC

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