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Review
. 2017 May 12;120(10):1551-1554.
doi: 10.1161/CIRCRESAHA.116.310424.

It's 10 pm; Do You Know Where Your Data Are? Data Provenance, Curation, and Storage

Mark E Anderson  1 , Stuart C Ray  2
Affiliations
Review

It's 10 pm; Do You Know Where Your Data Are? Data Provenance, Curation, and Storage

Mark E Anderson et al. Circ Res. .

Erratum in

No abstract available

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Figures

Figure 1
Figure 1
Comparison chart of user features and solutions for storing biomedical research data, based on generalities; specific implementations and institutions will vary, but suggested preference is indicated by color ranging from green (prefer) to red (avoid). aLaptops, if institutionally-managed/secured, may be suitable for carrying a copy of research data, but the primary/essential data should reside in a more secure location bRemote desktop access tools can create vulnerabilities unless managed by IT personnel. cIf primary/essential data are stored, removal from campus would violate policy on location of institutional data (must remain on-site). dRemote access to cloud data requires network access or synchronization (when network access is intermittent); latter may be disabled at some institutions for IT security reasons. eRemote access to NAS requires network connection and cloud desktop, VPN with drive mapping, or other solution (now becoming routine). fHard drives have high failure rate; laptops increase failure rate, and add risk of device loss/theft/damage. gProper authentication and authorization generally depend on device management by institutional IT team. hPrimary/essential research data must remain on campus (or in institutionally-contracted storage) and accessible to authorized institutional authorities for compliance reasons. iWhile lab data often do not include PHI, many labs handle clinical specimens with some PHI (MRNs, dates of clinical events, DOBs, etc); in addition, clinician scientists tend to have some PHI wherever they work. jUnder special circumstances when there is not suitable alternative, desktop (locked office server) storage of PHI-containing data may be approved by some institutions. kAffordability of NAS depends on data footprint, economies of scale, institutional investment, Moore’s Law, planning. lIn the event of concern raised (e.g. to the NIH Office of Research Integrity), it is essential that the host institution have access to primary data and methods to support the publication or grant proposal in question.
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References

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