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. 2017 Jun;19(3):238-246.
doi: 10.1097/NJH.0000000000000335.

Elements of Family-Centered Care in the Pediatric Intensive Care Unit: An Integrative Review

Claire A Richards  1 , Helene Starks  2 , M Rebecca O'Connor  3 , Ardith Z Doorenbos  4
Affiliations

Elements of Family-Centered Care in the Pediatric Intensive Care Unit: An Integrative Review

Claire A Richards et al. J Hosp Palliat Nurs. 2017 Jun.

Abstract

This paper reports result from a systematic search and thematic analysis of qualitative literature to identify key issues related to family-centered care, behaviors, and communication skills that support the parental role and improve patient and family outcomes in the PICU. Five themes were identified: 1) sharing information; 2) hearing parental voices; 3) making decisions for or with parents; 4) negotiating roles; and 5) individualizing communication. These themes highlight several gaps between how parents want to be involved and perceive clinicians engage them in the care of their child. Parental preferences for involvement differ in the domains of information sharing, decision making, and power-sharing across a spectrum of parental roles from parents as care provider to care recipient. The PICU setting may place clinicians in a double bind trying to both engage families and protect them from distress. Asking families of critically ill children about their preferences for participation across these domains may improve clinician-family relationships.

Keywords: Family Nursing; Health Communication; Intensive Care Units, Pediatric; Patient-Centered Care; Professional-Family Relations; Terminal Care.

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Figures

Figure 1
Figure 1
Prisma Flow Diagram
Figure 2
Figure 2
The Continuum of Family-Centered Care in the PICU (parent X and Y are examples and not based on data)
See this image and copyright information in PMC

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