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. 2017 Mar 9:5:2050312117697151.
doi: 10.1177/2050312117697151. eCollection 2017.

Experiences of supportive care when waiting for a lung re-transplantation

Bodil Ivarsson  1   2 , Richard Ingemansson  1   2 , Trygve Sjöberg  1   2
Affiliations

Experiences of supportive care when waiting for a lung re-transplantation

Bodil Ivarsson et al. SAGE Open Med. .

Abstract

Objectives: Lung transplant patients and their next of kin share the experiences of illness but little is known in the face of a lung re-transplantation. To describe patients' and next of kin's experiences of supportive care while awaiting lung re-transplantation and the objective was to highlight a small group with special circumstances and needs.

Methods: Using qualitative content analysis, seven adult patients and seven next of kin were consecutively selected from a regional lung transplantation centre and individually interviewed shortly after decision about lung re-transplantation.

Results: The experiences of supportive care were captured in one main category: 'once again haunted by death' and three sub-categories: 'when life turns and death once again snorts down your neck', 'the importance of information', and 'perceptions of support'. A complex interaction between the experience of waiting, and communication patterns, emotional states, and social support was shown.

Conclusion: This study provides insights into the complex interaction between the experience of waiting for a second lung transplant and communication patterns, emotional states, social support and social roles between patients, next of kin, healthcare professionals, and the health and social welfare system. There is a need for developing supportive care programme to achieve the best possible care.

Keywords: Advanced lung disease; chronic illness; experiences in everyday life; family; pulmonary re-transplantation.

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Conflict of interest statement

Declaration of conflicting interests: The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

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