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. 2015 Sep 3;2(2):e9.
doi: 10.2196/rehab.4109.

Disease Profiling for Computerized Peer Support of Ménière's Disease

Affiliations

Disease Profiling for Computerized Peer Support of Ménière's Disease

Jyrki Rasku et al. JMIR Rehabil Assist Technol. .

Abstract

Background: Peer support is an emerging form of person-driven active health care. Chronic conditions such as Ménière's disease (a disorder of the inner ear) need continuing rehabilitation and support that is beyond the scope of routine clinical medical practice. Hence, peer-support programs can be helpful in supplementing some of the rehabilitation aspects.

Objective: The aim of this study was to design a computerized data collection system for the peer support of Menière's disease that is capable in profiling the subject for diagnosis and in assisting with problem solving.

Methods: The expert program comprises several data entries focusing on symptoms, activity limitations, participation restrictions, quality of life, attitude and personality trait, and an evaluation of disease-specific impact. Data was collected from 740 members of the Finnish Ménière's Federation and utilized in the construction and evaluation of the program.

Results: The program verifies the diagnosis of a person by using an expert system, and the inference engine selects 50 cases with matched symptom severity by using a nearest neighbor algorithm. These cases are then used as a reference group to compare with the person's attitude, sense of coherence, and anxiety. The program provides feedback for the person and uses this information to guide the person through the problem-solving process.

Conclusions: This computer-based peer-support program is the first example of an advanced computer-oriented approach using artificial intelligence, both in the profiling of the disease and in profiling the person's complaints for hearing loss, tinnitus, and vertigo.

Keywords: Ménière’s disease; activity limitation; diagnosis; disease profiling; enablement; machine learning; participation restriction; peer-support.

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Conflict of interest statement

Conflicts of Interest: None declared.

Figures

Figure 1
Figure 1
Disease scoring formula.
Figure 2
Figure 2
System architecture and data description of the peer-support program. (Note: Questionnaire data is stored in the person-data database and disease descriptors are stored in the knowledge database. The table in the left shows the questionnaires used. The disease descriptors on the right side include the inference engine.).
Figure 3
Figure 3
Histogram of program criteria values S(d).
Figure 4
Figure 4
The general health-related quality of life and the disease-specific impact of Ménière's disease compared with 50 matched cases.

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