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. 2018 Feb 1;25(2):206-209.
doi: 10.1093/jamia/ocx054.

An informatics research agenda to support patient and family empowerment and engagement in care and recovery during and after hospitalization

Sarah Collins  1   2   3 , Patricia Dykes  1   2 , David W Bates  1   2   3   4 , Brittany Couture  1 , Ronen Rozenblum  1   2 , Jennifer Prey  5 , Kristin O'Reilly  6 , Patricia Q Bourie  6 , Cindy Dwyer  7 , S Ryan Greysen  8 , Jeffery Smith  9 , Michael Gropper  10 , Anuj K Dalal  1   2
Affiliations

An informatics research agenda to support patient and family empowerment and engagement in care and recovery during and after hospitalization

Sarah Collins et al. J Am Med Inform Assoc. .

Abstract

As part of an interdisciplinary acute care patient portal task force with members from 10 academic medical centers and professional organizations, we held a national workshop with 71 attendees representing over 30 health systems, professional organizations, and technology companies. Our consensus approach identified 7 key sociotechnical and evaluation research focus areas related to the consumption and capture of information from patients, care partners (eg, family, friends), and clinicians through portals in the acute and post-acute care settings. The 7 research areas were: (1) standards, (2) privacy and security, (3) user-centered design, (4) implementation, (5) data and content, (6) clinical decision support, and (7) measurement. Patient portals are not yet in routine use in the acute and post-acute setting, and research focused on the identified domains should increase the likelihood that they will deliver benefit, especially as there are differences between needs in acute and post-acute care compared to the ambulatory setting.

Keywords: patient engagement; patient experience; patient portals; quality of care.

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Figures

Figure 1.
Figure 1.
Conceptual framework of sociotechnical and evaluation research agenda for acute care patient portals.
See this image and copyright information in PMC

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