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. 2017 Nov;47(11):3659-3668.
doi: 10.1007/s10803-017-3254-6.

Brief Report: What Happens When I Can No Longer Support My Autistic Relative? Worries About the Future for Family Members of Autistic Adults

Renske Herrema  1 , Deborah Garland  2 , Malcolm Osborne  3 , Mark Freeston  4   5 , Emma Honey  4   5 , Jacqui Rodgers  6   7
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Brief Report: What Happens When I Can No Longer Support My Autistic Relative? Worries About the Future for Family Members of Autistic Adults

Renske Herrema et al. J Autism Dev Disord. 2017 Nov.

Abstract

Very little is known about autism and adulthood. Family members are often the primary support for autistic adults and frequently express concerns about what the future will hold and what support will be available for their relative. 120 family members of autistic adults completed an online survey exploring concerns about the future for their relative. The most endorsed concerns were "their needs won't be met" (77% worried weekly), "whether they will be happy" (72% worried weekly) and "who will care for them" (58% worried weekly). The results highlight the importance of implementing structured and timely support through collaboration with governmental policy, local commissioning and communication with charities to help prepare family members and their autistic relative for the future.

Keywords: Adults; Autism; Family members; Future; Support; Worry.

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