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. 2018 Feb;12(1):1-9.
doi: 10.1007/s11764-017-0633-0. Epub 2017 Aug 31.

Face-to-face vs. online peer support groups for prostate cancer: A cross-sectional comparison study

Johannes Huber  1 , Tanja Muck  1 , Philipp Maatz  1 , Bastian Keck  2 , Paul Enders  3 , Imad Maatouk  4 , Andreas Ihrig  5
Affiliations

Face-to-face vs. online peer support groups for prostate cancer: A cross-sectional comparison study

Johannes Huber et al. J Cancer Surviv. 2018 Feb.

Abstract

Background: As social media are evolving rapidly online support groups (OSG) are becoming increasingly important for patients. Therefore, the aim of our study was to compare the users of traditional face-to-face support groups and OSG.

Patients and methods: We performed a cross-sectional comparison study of all regional face-to-face support groups and the largest OSG in Germany. By applying validated instruments, the survey covered sociodemographic and disease-related information, decision-making habits, psychological aspects, and quality of life.

Results: We analyzed the complete data of 955 patients visiting face-to-face support groups and 686 patients using OSG. Patients using OSG were 6 years younger (65.3 vs. 71.5 years; p < 0.001), had higher education levels (47 vs. 21%; p < 0.001), and had higher income. Patients using OSG reported a higher share of metastatic disease (17 vs. 12%; p < 0.001). Patients using OSG reported greater distress. There were no significant differences in anxiety, depression, and global quality of life. In the face-to-face support groups, patient ratings were better for exchanging information, gaining recognition, and caring for others. Patients using OSG demanded a more active role in the treatment decision-making process (58 vs. 33%; p < 0.001) and changed their initial treatment decision more frequently (29 vs. 25%; p < 0.001).

Conclusions: Both modalities of peer support received very positive ratings by their users and have significant impact on treatment decision-making.

Implications for cancer survivors: Older patients might benefit more from the continuous social support in face-to-face support groups. OSG offer low-threshold advice for acute problems to younger and better educated patients with high distress.

Trial registration: www.germanctr.de , number DRKS00005086.

Keywords: Decision-making; Face-to-face support group; Online support group; Peer support; Prostate cancer; Self-help group.

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