Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
Review
. 2017 Oct 1;42(9):983-994.
doi: 10.1093/jpepsy/jsx095.

Development and Content Validation of the Transition Readiness Inventory Item Pool for Adolescent and Young Adult Survivors of Childhood Cancer

Lisa A Schwartz  1   2 , Jessica L Hamilton  3 , Lauren D Brumley  2 , Lamia P Barakat  1   2 , Janet A Deatrick  2 , Dava E Szalda  1   2 , Katherine B Bevans  3 , Carole A Tucker  3 , Lauren C Daniel  1   4 , Eliana Butler  1 , Anne E Kazak  5   6 , Wendy L Hobbie  1 , Jill P Ginsberg  1   2 , Alexandra M Psihogios  1 , Elizabeth Ver Hoeve  1 , Lisa K Tuchman  7
Affiliations
Review

Development and Content Validation of the Transition Readiness Inventory Item Pool for Adolescent and Young Adult Survivors of Childhood Cancer

Lisa A Schwartz et al. J Pediatr Psychol. .

Abstract

Objective: The development of the Transition Readiness Inventory (TRI) item pool for adolescent and young adult childhood cancer survivors is described, aiming to both advance transition research and provide an example of the application of NIH Patient Reported Outcomes Information System methods.

Methods: Using rigorous measurement development methods including mixed methods, patient and parent versions of the TRI item pool were created based on the Social-ecological Model of Adolescent and young adult Readiness for Transition (SMART).

Results: Each stage informed development and refinement of the item pool. Content validity ratings and cognitive interviews resulted in 81 content valid items for the patient version and 85 items for the parent version.

Conclusions: TRI represents the first multi-informant, rigorously developed transition readiness item pool that comprehensively measures the social-ecological components of transition readiness. Discussion includes clinical implications, the application of TRI and the methods to develop the item pool to other populations, and next steps for further validation and refinement.

Keywords: adolescence; assessment; cancer; chronic illness; transition readiness.

PubMed Disclaimer

Figures

Figure 1.
Figure 1.
The Social-ecological Model of AYA Readiness to Transition to Adult Care (SMART). Reprinted with permission from JAMA Pediatrics. Original source: Schwartz LA, Brumley LD, Tuchman LK, etal. Stakeholder Validation of a Model of Readiness for Transition to Adult Care. JAMA Pediatr. 2013.
Figure 2.
Figure 2.
Number of extant transition readiness measures (N = 37) that included at least one item assessing each SMART domain.
Figure 3.
Figure 3.
Number of items per SMART domain (six subjective domains) in the patient (67 items) and parent versions (73 items) of TRI after the cognitive interviews.
See this image and copyright information in PMC

Similar articles

See all similar articles

Cited by

See all "Cited by" articles

References

    1. Armstrong G. T., Kawashima T., Leisenring W., Stratton K., Stovall M., Hudson M. M., Sklar C. A., Robison L. L., Oeffinger K. C. (2014). Aging and risk of severe, disabling, life-threatening, and fatal events in the childhood cancer survivor study. Journal of Clinical Oncology, 32, 1218–1227. - PMC - PubMed
    1. Bashore L., Bender J. (2016). Evaluation of the utility of a transition workbook in preparing adolescent and young adult cancer survivors for transition to adult services: A pilot study. Journal of Pediatric Oncology Nursing, 33, 111–118. - PubMed
    1. Betz C. L., Telfair J. (2007). Health care transitions: An introduction In Betz C. L., Nehring W. M. (Eds.), Promoting health care transitions for adolescents with special health care needs and disabilities (pp. 3–19). Baltimore, MD: Paul H. Brookes Pub.
    1. Cella D., Yount S., Rothrock N., Gershon R., Cook K., Reeve B., Ader D., Fries J. F., Bruce B., Rose M.; PROMIS Cooperative Group. (2007). The Patient-Reported Outcomes Measurement Information System (PROMIS): Progress of an NIH Roadmap cooperative group during its first two years. Medical Care, 45, S3–S11. - PMC - PubMed
    1. Children's Oncology Group. (2013). Long-term follow-up guidelines for survivors of childhood, adolescent, and young adult cancers version 4.0. Retrieved from www.survivorshipguidelines.org