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Review
. 2017 Oct 1;42(9):983-994.
doi: 10.1093/jpepsy/jsx095.

Development and Content Validation of the Transition Readiness Inventory Item Pool for Adolescent and Young Adult Survivors of Childhood Cancer

Lisa A Schwartz  1   2 , Jessica L Hamilton  3 , Lauren D Brumley  2 , Lamia P Barakat  1   2 , Janet A Deatrick  2 , Dava E Szalda  1   2 , Katherine B Bevans  3 , Carole A Tucker  3 , Lauren C Daniel  1   4 , Eliana Butler  1 , Anne E Kazak  5   6 , Wendy L Hobbie  1 , Jill P Ginsberg  1   2 , Alexandra M Psihogios  1 , Elizabeth Ver Hoeve  1 , Lisa K Tuchman  7
Affiliations
Review

Development and Content Validation of the Transition Readiness Inventory Item Pool for Adolescent and Young Adult Survivors of Childhood Cancer

Lisa A Schwartz et al. J Pediatr Psychol. .

Abstract

Objective: The development of the Transition Readiness Inventory (TRI) item pool for adolescent and young adult childhood cancer survivors is described, aiming to both advance transition research and provide an example of the application of NIH Patient Reported Outcomes Information System methods.

Methods: Using rigorous measurement development methods including mixed methods, patient and parent versions of the TRI item pool were created based on the Social-ecological Model of Adolescent and young adult Readiness for Transition (SMART).

Results: Each stage informed development and refinement of the item pool. Content validity ratings and cognitive interviews resulted in 81 content valid items for the patient version and 85 items for the parent version.

Conclusions: TRI represents the first multi-informant, rigorously developed transition readiness item pool that comprehensively measures the social-ecological components of transition readiness. Discussion includes clinical implications, the application of TRI and the methods to develop the item pool to other populations, and next steps for further validation and refinement.

Keywords: adolescence; assessment; cancer; chronic illness; transition readiness.

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Figures

Figure 1.
Figure 1.
The Social-ecological Model of AYA Readiness to Transition to Adult Care (SMART). Reprinted with permission from JAMA Pediatrics. Original source: Schwartz LA, Brumley LD, Tuchman LK, etal. Stakeholder Validation of a Model of Readiness for Transition to Adult Care. JAMA Pediatr. 2013.
Figure 2.
Figure 2.
Number of extant transition readiness measures (N = 37) that included at least one item assessing each SMART domain.
Figure 3.
Figure 3.
Number of items per SMART domain (six subjective domains) in the patient (67 items) and parent versions (73 items) of TRI after the cognitive interviews.
See this image and copyright information in PMC

References

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