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Review
. 2016 Mar 7:2:10.
doi: 10.1186/s40900-016-0022-2. eCollection 2016.

Engaging older adults in healthcare research and planning: a realist synthesis

Heather McNeil  1 , Jacobi Elliott  1 , Kelsey Huson  1   2 , Jessica Ashbourne  1 , George Heckman  1   3 , Jennifer Walker  1   4 , Paul Stolee  1   3
Affiliations
Review

Engaging older adults in healthcare research and planning: a realist synthesis

Heather McNeil et al. Res Involv Engagem. .

Abstract

Plain english summary: The importance of citizen involvement in healthcare research and planning has been widely recognized. There is however, a lack of understanding of how best to engage older adults, Canada's fastest growing segment of the population and biggest users of the healthcare system. We aimed to address this gap by developing an understanding of the engagement of older adults and their caregivers in healthcare research and planning. We conducted a review of available knowledge on engagement in healthcare research and planning with a focus on older adults and their caregivers. A five stage engagement framework emerged from this study that can be used to guide engagement efforts. We are continuing to collaborate with older adults and decision makers to develop and test strategies based on the presented framework.

Abstract: Background The importance of engaging the community in healthcare research and planning has been widely recognized. Currently however, there is a limited focus on older adults, Canada's fastest growing segment of the population and biggest users of the healthcare system. Objective This project aimed to develop an understanding of engagement of older adults and their caregivers in healthcare research and planning. Method A realist synthesis was conducted of the available knowledge on engagement in healthcare research and planning. The search methodology was informed by a framework for realist syntheses following five phases, including consultations with older adults. The synthesis included theoretical frameworks, and both peer-reviewed and grey literature. Results The search generated 15,683 articles, with 562 focusing on healthcare research and planning. The review lead to the development of a framework to engage older adults and their caregivers in healthcare research and planning. The 5 stages environment, plan, establish, build, and transition are accompanied with example context, mechanism, and outcomes to guide the use of this framework. Conclusion We have identified a framework that promotes meaningful engagement of older adults and their caregivers. We are continuing to collaborate with our community partners to further develop and evaluate engagement strategies that align with the presented framework.

Keywords: Engagement; Older adults; Planning; Realist synthesis; Research.

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Peer reviewed literature sorting
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Program theory: Framework for engaging older adults in healthcare research and planning
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References

    1. Holosko MJ, Leslie DR, Cassano DR. How service users become empowered in human service organizations: the empowerment model. Int J Health Care Qual Assur. 2001;14(3):126–33. doi: 10.1108/09526860110391612. - DOI - PubMed
    1. Doherty W, Mendenhall T. Citizen health care: A model for engaging patients, families, and communities as coproducers of health. Fam Syst Health. 2006;24(3):251–63. doi: 10.1037/1091-7527.24.3.251. - DOI
    1. Tallon D, Chard J, Dieppe P. Relation between agendas of the research community and the research consumer. Lancet. 2000;355:2037–40. doi: 10.1016/S0140-6736(00)02351-5. - DOI - PubMed
    1. Staley K. Summary Exploring Impact: Public Involvement in NHS, Public Health and Social Care Research. Eastleigh: INVOLVE; 2009.
    1. Morone JA, Kilbret EH. Power to the people? Restoring citizen participation. J Health Polit Policy Law. 2003;28(2–3):271–88. doi: 10.1215/03616878-28-2-3-271. - DOI - PubMed

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