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. 2017 Dec;11(12):379-387.
doi: 10.5489/cuaj.4590. Epub 2017 Nov 1.

The kidney cancer research priority-setting partnership: Identifying the top 10 research priorities as defined by patients, caregivers, and expert clinicians

Jennifer Jones  1 , Jaimin Bhatt  2 , Jonathan Avery  3 , Andreas Laupacis  4 , Katherine Cowan  5 , Naveen Basappa  6 , Joan Basiuk  7 , Christina Canil  8 , Sohaib Al-Asaaed  9 , Daniel Heng  10 , Lori Wood  11 , Dawn Stacey  12 , Christian Kollmannsberger  13 , Michael A S Jewett  2
Affiliations

The kidney cancer research priority-setting partnership: Identifying the top 10 research priorities as defined by patients, caregivers, and expert clinicians

Jennifer Jones et al. Can Urol Assoc J. 2017 Dec.

Abstract

It is critically important to define disease-specific research priorities to better allocate limited resources. There is growing recognition of the value of involving patients and caregivers, as well as expert clinicians in this process. To our knowledge, this has not been done this way for kidney cancer. Using the transparent and inclusive process established by the James Lind Alliance, the Kidney Cancer Research Network of Canada (KCRNC) sponsored a collaborative consensus-based priority-setting partnership (PSP) to identify research priorities in the management of kidney cancer. The final result was identification of 10 research priorities for kidney cancer, which are discussed in the context of current initiatives and gaps in knowledge. This process provided a systematic and effective way to collaboratively establish research priorities with patients, caregivers, and clinicians, and provides a valuable resource for researchers and funding agencies.

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Conflict of interest statement

Competing interests: Dr. Bhatt has received honoraria from Astellas U.K. Dr. Laupacis has been an advisor for Novartis. Dr. Basappa has been an advisor for Astellas, AstraZeneca, BI, BMS, Janssen, Novartis, and Pfizer; and has received honoraria from Astellas, BMS, Janssen, Novartis, and Pfizer. Dr. Canil has attended advisory boards for Bayer, BMS, Esai, Merck, Pfizer and Roche; has been a speaker for Bayer and Sanofi; and has received sponsorship for an international preceptorship from Pfizer. Dr. Al-Asaaed has been an advisor for Janssen and Pfizer; has received grants/honoraria from Amgen, Astellas, Celgene, Novartis, and Pfizer; and has participated in clinical trials supported by Janssen. Dr. Heng has been an advisor for BMS, Novartis, and Pfizer. Dr. Wood has been an advisor for Astellas, Novartis, and Pfizer, but received no financial compensation; and has participated in clinical trials supported by AstraZeneca, BMS, Exelixis, Merck, Pfizer, and Roche. Dr. Kollmannsberger has been an advisor for Astellas, BMS, Novartis, Pfizer, and Roche; has received presentation honoraria from BMS, Pfizer, and Novartis; and has participated in clinical trials supported by Astellas, AstraZeneca, BMS, Janssen, Merck, Novartis, Pfizer, and Sanofi. The remaining authors report no competing personal or financial interests.

Figures

Fig. 1
Fig. 1
Priority-setting process algorithm.
See this image and copyright information in PMC

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