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. 2017 Dec;14(4):461-468.
doi: 10.1007/s11673-017-9814-9. Epub 2017 Nov 6.

When Doctors and Parents Don't Agree: The story of Charlie Gard

Natasha Hammond-Browning  1
Affiliations

When Doctors and Parents Don't Agree: The story of Charlie Gard

Natasha Hammond-Browning. J Bioeth Inq. 2017 Dec.

Abstract

This discussion follows a series of high profile cases involving a terminally ill child, Charlie Gard. These cases are significant as they trace the complexities that arise when parents and medical teams do not agree as well as addressing the question of whether there is a right to access experimental treatment.

Keywords: Access to experimental treatment; Article 2, 5, 6 and 8 ECHR; Best interests of child; Parental wishes; Travel abroad for medical treatment; Withdrawal of medical treatment.

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References

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    1. GoFundMe. 2017. Please help to save Charlie’s life. https://www.gofundme.com/please-help-to-save-charlies-life. Accessed April 30, 2017.
    1. Great Ormond Street Hospital (GOSH). GOSH’s Position Statement Hearing 24 July 2017. http://www.gosh.nhs.uk/news/latest-press-releases/gosh-position-statemen.... Accessed July 24, 2017.
    1. Jayaram, R. 2017. Would Charlie Gard really have survived if he’s been treated sooner? Here’s the sad truth. The Independent, July 26. http://www.independent.co.uk/voices/charlie-gard-gosh-hirano-would-he-ha.... Accessed July 26, 2017.
    1. Moore, C., and S. Greenhill. 2017. Baby Charlie’s parents sob as court-appointed guardian tells judge that he should be allowed to die despite £1.2million raised to send him to US for treatment. Daily Mail, April 7. http://www.dailymail.co.uk/news/article-4389784/High-Court-judge-rule-fa.... Accessed April 07, 2017.

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