Home is where the future is: The BrightFocus Foundation consensus panel on dementia care

doi:10.1016/j.jalz.2017.10.006

Review

. 2018 Jan;14(1):104-114.

doi: 10.1016/j.jalz.2017.10.006. Epub 2017 Nov 21.

Home is where the future is: The BrightFocus Foundation consensus panel on dementia care

Quincy M Samus¹, Betty Smith Black², Diane Bovenkamp³, Michael Buckley³, Christopher Callahan⁴, Karen Davis⁵, Laura N Gitlin⁶, Nancy Hodgson⁷, Deirdre Johnston², Helen C Kales⁸, Michele Karel⁹, John Jay Kenney¹⁰, Shari M Ling¹¹, Maï Panchal¹², Melissa Reuland², Amber Willink⁵, Constantine G Lyketsos²

Affiliations

¹ Department of Psychiatry, School of Medicine, Johns Hopkins University, Baltimore, MD, USA. Electronic address: qmiles@jhmi.edu.
² Department of Psychiatry, School of Medicine, Johns Hopkins University, Baltimore, MD, USA.
³ BrightFocus Foundation, Clarksburg, MD, USA.
⁴ Department of Medicine, Indiana University School of Medicine, Center for Aging Research, Indianapolis, IN, USA.
⁵ Department of Health Policy and Management, Bloomberg School of Public Health, Johns Hopkins University, Baltimore, MD, USA.
⁶ Department of Community Public Health, Johns Hopkins University School of Nursing, Baltimore, MD, USA.
⁷ Department of Gerontology, School of Nursing, University of Pennsylvania, Philadelphia, PA, USA.
⁸ Department of Psychiatry, University of Michigan, Ann Arbor, MI, USA; Department of Veterans Affairs, HSR&D Center for Clinical Management Research, Washington, DC, USA.
⁹ Veterans Administration Central Office, Washington, DC, USA.
¹⁰ Aging & Disability Services, Montgomery Department of Health & Human Services, Rockville, MD, USA.
¹¹ Center for Clinical Standards and Quality, Centers for Medicare and Medicaid Services, Baltimore, MD, USA.
¹² Fondation Vaincre Alzheimer, Paris, France; Alzheimer Forschung Initiative, Düsseldorf, Germany; Alzheimer Nederland, Amersfoort, Amersfoort, The Netherlands.

PMID: 29161539
PMCID: PMC5870894
DOI: 10.1016/j.jalz.2017.10.006

Review

Home is where the future is: The BrightFocus Foundation consensus panel on dementia care

Quincy M Samus et al. Alzheimers Dement. 2018 Jan.

. 2018 Jan;14(1):104-114.

doi: 10.1016/j.jalz.2017.10.006. Epub 2017 Nov 21.

Authors

Affiliations

¹ Department of Psychiatry, School of Medicine, Johns Hopkins University, Baltimore, MD, USA. Electronic address: qmiles@jhmi.edu.
² Department of Psychiatry, School of Medicine, Johns Hopkins University, Baltimore, MD, USA.
³ BrightFocus Foundation, Clarksburg, MD, USA.
⁴ Department of Medicine, Indiana University School of Medicine, Center for Aging Research, Indianapolis, IN, USA.
⁵ Department of Health Policy and Management, Bloomberg School of Public Health, Johns Hopkins University, Baltimore, MD, USA.
⁶ Department of Community Public Health, Johns Hopkins University School of Nursing, Baltimore, MD, USA.
⁷ Department of Gerontology, School of Nursing, University of Pennsylvania, Philadelphia, PA, USA.
⁸ Department of Psychiatry, University of Michigan, Ann Arbor, MI, USA; Department of Veterans Affairs, HSR&D Center for Clinical Management Research, Washington, DC, USA.
⁹ Veterans Administration Central Office, Washington, DC, USA.
¹⁰ Aging & Disability Services, Montgomery Department of Health & Human Services, Rockville, MD, USA.
¹¹ Center for Clinical Standards and Quality, Centers for Medicare and Medicaid Services, Baltimore, MD, USA.
¹² Fondation Vaincre Alzheimer, Paris, France; Alzheimer Forschung Initiative, Düsseldorf, Germany; Alzheimer Nederland, Amersfoort, Amersfoort, The Netherlands.

PMID: 29161539
PMCID: PMC5870894
DOI: 10.1016/j.jalz.2017.10.006

Abstract

Introduction: A national consensus panel was convened to develop recommendations on future directions for home-based dementia care (HBDC).

Methods: The panel summarized advantages and challenges of shifting to HBDC as the nexus of care and developed consensus-based recommendations.

Results: The panel developed five core recommendations: (1) HBDC should be considered the nexus of new dementia models, from diagnosis to end of life in dementia; (2) new payment models are needed to support HBDC and reward integration of care; (3) a diverse new workforce that spans the care continuum should be prepared urgently; (4) new technologies to promote communication, monitoring/safety, and symptoms management must be tested, integrated, and deployed; and (5) targeted dissemination efforts for HBDC must be employed.

Discussion: HBDC represents a promising paradigm shift to improve care for those living with dementia and their family caregivers: these recommendations provide a framework to chart a course forward for HBDC.

Keywords: Alzheimer's and related dementias (ADRD); Care financing; Community-based care; Cost effectiveness; Dementia; Home-based care; Payment models; Technology; Workforce.

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References

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[1] Prince M, Wimo A, Guerchet M, Gemma-Claire A, Wu YT, Prina M. World Alzheimer Report 2015: The Global Impact of Dementia - An analysis of prevalence, incidence, cost and trends. Alzheimer's Dis Int. 2015;84 doi: 10.1111/j.0963-7214.2004.00293.x. - DOI

[2] Prince M, Wimo A, Guerchet M, Gemma-Claire A, Wu YT, Prina M. World Alzheimer Report 2015: The Global Impact of Dementia - An analysis of prevalence, incidence, cost and trends. Alzheimer's Dis Int. 2015;84 doi: 10.1111/j.0963-7214.2004.00293.x. - DOI

[3] AARP. [Accessed June 9, 2017];2015 Report: Caregiving in the U S. 2016 http://www.aarp.org/content/dam/aarp/ppi/2015/caregiving-in-the-united-s....

[4] AARP. [Accessed June 9, 2017];2015 Report: Caregiving in the U S. 2016 http://www.aarp.org/content/dam/aarp/ppi/2015/caregiving-in-the-united-s....

[5] Wolff J, Spillman B, Freedman V. A national profile of family and unpaid caregivers who assist older adults with health care activities. [Accessed April 27, 2017];JAMA Intern. 2016 http://jamanetwork.com/journals/jamainternalmedicine/fullarticle/2491683. - PMC - PubMed

[6] Wolff J, Spillman B, Freedman V. A national profile of family and unpaid caregivers who assist older adults with health care activities. [Accessed April 27, 2017];JAMA Intern. 2016 http://jamanetwork.com/journals/jamainternalmedicine/fullarticle/2491683. - PMC - PubMed

[7] Statistics NC for H. Long-Term Care Providers and Services Users in the United States: Data From the National Study of Long-Term Care Providers Library of Congress Cataloging-in-Publication Data. [Accessed September 12, 2017];Vital Heal Stat Centers Dis Control Prev Natl Cent Heal Stat. 2013 3(38):2016–1422. http://lccn.loc.gov/2016000580.

[8] Statistics NC for H. Long-Term Care Providers and Services Users in the United States: Data From the National Study of Long-Term Care Providers Library of Congress Cataloging-in-Publication Data. [Accessed September 12, 2017];Vital Heal Stat Centers Dis Control Prev Natl Cent Heal Stat. 2013 3(38):2016–1422. http://lccn.loc.gov/2016000580.

[9] Zimmerman S, Sloane PD, Reed D. Dementia prevalence and care in assisted living. Health Aff (Millwood) 2014;33(4):658–666. doi: 10.1377/hlthaff.2013.1255. - DOI - PubMed

[10] Zimmerman S, Sloane PD, Reed D. Dementia prevalence and care in assisted living. Health Aff (Millwood) 2014;33(4):658–666. doi: 10.1377/hlthaff.2013.1255. - DOI - PubMed

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Home is where the future is: The BrightFocus Foundation consensus panel on dementia care

Affiliations

Home is where the future is: The BrightFocus Foundation consensus panel on dementia care

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