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. 2018 Feb;16(1):59-63.
doi: 10.1089/bio.2017.0089. Epub 2017 Nov 30.

Translating Biobank Science into Patient-Centered Language

Marilyn E Coors  1   2 , Noah Westfall  3 , Linda Zittleman  3 , Matthew Taylor  4 , John M Westfall  3
Affiliations

Translating Biobank Science into Patient-Centered Language

Marilyn E Coors et al. Biopreserv Biobank. 2018 Feb.

Abstract

Introduction: This project used Boot Camp Translation (BCT) to translate the complex medical jargon of biobanking into locally relevant evidence-based messages and materials to support increased knowledge and understanding in the local community.

Methods: Biobank BCT was a partnership of 16 community members and 5 academic researchers. The partnership met for 8 months.

Results: The partnership developed five main and seven submessages to assist patients and community members in making an informed decision about enrollment in a biobank.

Discussion: The resulting messages balance an individual's right to privacy and choice, while encouraging participation for the greater good.

Keywords: biobank; biomedical ethics; community engagement.

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Conflict of interest statement

No conflicting financial interests exist.

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