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Multicenter Study
. 2018 Jan;48(1):84-87.
doi: 10.1111/imj.13666.

Acceptability of opt-out consent in a hospital patient population

Daniel Boulos  1   2 , Eric Morand  3 , Michelle Foo  3 , Janki Dhaval Trivedi  3 , Ruth Lai  3 , Rachel Huntersmith  3 , Karen Zhang  3 , Claire Brigid Stark  3 , Suong Le  2   3
Affiliations
Multicenter Study

Acceptability of opt-out consent in a hospital patient population

Daniel Boulos et al. Intern Med J. 2018 Jan.

Abstract

Research has been slow to leverage digitalised medical records as a data resource. Our study assessed patient acceptability of opt-out consent for secondary use of digital patient data. A questionnaire was distributed to patients in multiple languages and with an interpreter. Of 919 completed surveys, 33% were of non-English speaking background, 15% self-reported cognitive impairment and 3% were refugees. Opt-out consent was accepted in this diverse population; 87% of participants approved, or were indifferent to opt-out consent. Gender, employment and cognition status were not significant determinants of acceptability.

Keywords: informed consent; opt-out; recruitment; research ethics.

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