'Total Pain' in Children with Severe Neurological Impairment
- PMID: 29346304
- PMCID: PMC5789295
- DOI: 10.3390/children5010013
'Total Pain' in Children with Severe Neurological Impairment
Abstract
Many children with palliative care needs experience difficulty in managing pain. Perhaps none more so than those with severe neurological impairment. For many years; behaviours in these children were misunderstood. As a result; pain was poorly recognised and inadequately managed. Significant advances have been made in the assessment and management of pain in this challenging group of patients. We summarise these advances; drawing on our own experience working with infants; children and young adults with palliative care needs within a UK tertiary paediatric palliative care service. We expand on the recent understanding of 'Total Pain'; applying a holistic approach to pain assessment and management in children with severe neurological impairment.
Keywords: cerebral palsy; chronic pain; cognitive impairment; neurological impairment; paediatric palliative care; persistent pain; ‘Total Pain’.
Conflict of interest statement
The authors declare no conflict of interest.
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