Incidental inequity

Kristen J Nowak^{1

2

3}, Alicia Bauskis¹, Hugh J Dawkins^{1

2

4

5}, Gareth Baynam^{6

7

8

9

10

11

12}

Affiliations

¹ Department of Health, Office of Population Health Genomics, Public and Aboriginal Health Division, Government of Western Australia, East Perth, WA, Australia.
² School of Biomedical Sciences, Faculty of Health and Medical Sciences, University of Western Australia, Crawley, WA, Australia.
³ Harry Perkins Institute of Medical Research, QEII Medical Centre, Nedlands; Centre for Medical Research, University of Western Australia, Crawley, WA, Australia.
⁴ Centre for Population Health Research, Curtin Health Innovation Research Institute, Curtin University of Technology, Bentley, WA, Australia.
⁵ Centre for Comparative Genomics, Murdoch University, Murdoch, WA, Australia.
⁶ Department of Health, Office of Population Health Genomics, Public and Aboriginal Health Division, Government of Western Australia, East Perth, WA, Australia. gareth.baynam@health.wa.gov.au.
⁷ Department of Health, Genetic Services of Western Australia, Government of Western Australia, Subiaco, WA, Australia. gareth.baynam@health.wa.gov.au.
⁸ School of Paediatrics and Child Health, University of Western Australia, Crawley, WA, Australia. gareth.baynam@health.wa.gov.au.
⁹ Institute for Immunology and Infectious Diseases, Murdoch University, Murdoch, WA, Australia. gareth.baynam@health.wa.gov.au.
¹⁰ Telethon Kids Institute, University of Western Australia, Subiaco, WA, Australia. gareth.baynam@health.wa.gov.au.
¹¹ Western Australian Register of Developmental Anomalies, King Edward Memorial Hospital, Subiaco, WA, Australia. gareth.baynam@health.wa.gov.au.
¹² School of Spatial Sciences, Curtin University, Bentley, WA, Australia. gareth.baynam@health.wa.gov.au.

PMID: 29449719
PMCID: PMC5945631
DOI: 10.1038/s41431-018-0101-y

Incidental inequity

Kristen J Nowak et al. Eur J Hum Genet. 2018 May.

. 2018 May;26(5):616-617.

doi: 10.1038/s41431-018-0101-y. Epub 2018 Feb 15.

Authors

Kristen J Nowak^{1

2

3}, Alicia Bauskis¹, Hugh J Dawkins^{1

2

4

5}, Gareth Baynam^{6

7

8

9

10

11

12}

Affiliations

¹ Department of Health, Office of Population Health Genomics, Public and Aboriginal Health Division, Government of Western Australia, East Perth, WA, Australia.
² School of Biomedical Sciences, Faculty of Health and Medical Sciences, University of Western Australia, Crawley, WA, Australia.
³ Harry Perkins Institute of Medical Research, QEII Medical Centre, Nedlands; Centre for Medical Research, University of Western Australia, Crawley, WA, Australia.
⁴ Centre for Population Health Research, Curtin Health Innovation Research Institute, Curtin University of Technology, Bentley, WA, Australia.
⁵ Centre for Comparative Genomics, Murdoch University, Murdoch, WA, Australia.
⁶ Department of Health, Office of Population Health Genomics, Public and Aboriginal Health Division, Government of Western Australia, East Perth, WA, Australia. gareth.baynam@health.wa.gov.au.
⁷ Department of Health, Genetic Services of Western Australia, Government of Western Australia, Subiaco, WA, Australia. gareth.baynam@health.wa.gov.au.
⁸ School of Paediatrics and Child Health, University of Western Australia, Crawley, WA, Australia. gareth.baynam@health.wa.gov.au.
⁹ Institute for Immunology and Infectious Diseases, Murdoch University, Murdoch, WA, Australia. gareth.baynam@health.wa.gov.au.
¹⁰ Telethon Kids Institute, University of Western Australia, Subiaco, WA, Australia. gareth.baynam@health.wa.gov.au.
¹¹ Western Australian Register of Developmental Anomalies, King Edward Memorial Hospital, Subiaco, WA, Australia. gareth.baynam@health.wa.gov.au.
¹² School of Spatial Sciences, Curtin University, Bentley, WA, Australia. gareth.baynam@health.wa.gov.au.

PMID: 29449719
PMCID: PMC5945631
DOI: 10.1038/s41431-018-0101-y

No abstract available

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References

1. Middleton A, Morley KI, Bragin E, et al. Attitudes of nearly 7000 health professionals, genomic researchers and publics toward the return of incidental results from sequencing research. Eur J Hum Genet. 2016;24:21–29. doi: 10.1038/ejhg.2015.58. - DOI - PMC - PubMed
1. Middleton A, Patch C, Wiggins J, et al. Position statement on opportunistic genomic screening from the association of genetic nurses and counsellors (UK and Ireland) Eur J Hum Genet. 2014;22:955–6. doi: 10.1038/ejhg.2013.301. - DOI - PMC - PubMed
1. Manrai AK, Funke BH, Rehm HL, et al. Genetic misdiagnoses and the potential for health disparities. N Engl J Med. 2016;375:655–65. doi: 10.1056/NEJMsa1507092. - DOI - PMC - PubMed
1. Inter-Agency Support Group on Indigenous Peoples’ Issues. The Health of Indigenous Peoples: Thematic papers towards the preparation of the 2014 World Conference on Indigenous Peoples (United Nations: June; 2014).
1. Kowal E. Disturbing pasts and promising futures: the politicis of indigenous genetic research in Australia. In: Berthier-Foglar S, Tolazzi S, Collingwood-Whittick S, editors. Biomapping indigenous peoples: towards an understanding of the issues. Amsterdam, The Netherlands: Rodopi; 2012. pp. 329–347.

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Incidental inequity

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Incidental inequity

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