The challenges of timely and safe HIV disclosure among perinatally HIV-infected adolescents in sub-Saharan Africa

Abstract

Purpose of review: Improved access to antiretroviral therapy has resulted in an emerging population of adolescents living with HIV (ALHIV) mainly in sub-Saharan Africa. Full disclosure of an HIV diagnosis includes naming HIV/AIDS and is an important step in coping with HIV. We reviewed the recent trends in the rates of children/adolescents who have been informed of their HIV infection according to age groups, the barriers and the evaluated interventions aimed at improving the HIV disclosure process to ALHIV in sub-Saharan Africa.

Recent findings: Literature shows that HIV disclosure remains challenging in sub-Saharan Africa. Although full HIV disclosure rates have increased recently, this is still insufficient and occurs at a late age (median 13 years). Individual disclosure is the main practice but group sessions involving adolescent peers also exist. The practice of the disclosure is often complex, because of multiple barriers related to caregivers (fear of the parents of the breaking of the family secrecy, feelings of guilt) and to healthcare workers (lack of training, excess workload).

Summary: The development and evaluation of research interventions adapted to sociocultural contexts to support timely and safe HIV disclosure to ALHIV is urgently needed to reach the 90-90-90 UNAIDS targets.