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. 2018 Feb 21;13(2):e0192533.
doi: 10.1371/journal.pone.0192533. eCollection 2018.

Stroke survivors' and informal caregivers' experiences of primary care and community healthcare services - A systematic review and meta-ethnography

Dominika M Pindus  1 , Ricky Mullis  1 , Lisa Lim  1 , Ian Wellwood  1 , A Viona Rundell  1 , Noor Azah Abd Aziz  2 , Jonathan Mant  1
Affiliations

Stroke survivors' and informal caregivers' experiences of primary care and community healthcare services - A systematic review and meta-ethnography

Dominika M Pindus et al. PLoS One. .

Erratum in

Abstract

Objective: To describe and explain stroke survivors and informal caregivers' experiences of primary care and community healthcare services. To offer potential solutions for how negative experiences could be addressed by healthcare services.

Design: Systematic review and meta-ethnography.

Data sources: Medline, CINAHL, Embase and PsycINFO databases (literature searched until May 2015, published studies ranged from 1996 to 2015).

Eligibility criteria: Primary qualitative studies focused on adult community-dwelling stroke survivors' and/or informal caregivers' experiences of primary care and/or community healthcare services.

Data synthesis: A set of common second order constructs (original authors' interpretations of participants' experiences) were identified across the studies and used to develop a novel integrative account of the data (third order constructs). Study quality was assessed using the Critical Appraisal Skills Programme checklist. Relevance was assessed using Dixon-Woods' criteria.

Results: 51 studies (including 168 stroke survivors and 328 caregivers) were synthesised. We developed three inter-dependent third order constructs: (1) marginalisation of stroke survivors and caregivers by healthcare services, (2) passivity versus proactivity in the relationship between health services and the patient/caregiver dyad, and (3) fluidity of stroke related needs for both patient and caregiver. Issues of continuity of care, limitations in access to services and inadequate information provision drove perceptions of marginalisation and passivity of services for both patients and caregivers. Fluidity was apparent through changing information needs and psychological adaptation to living with long-term consequences of stroke.

Limitations: Potential limitations of qualitative research such as limited generalisability and inability to provide firm answers are offset by the consistency of the findings across a range of countries and healthcare systems.

Conclusions: Stroke survivors and caregivers feel abandoned because they have become marginalised by services and they do not have the knowledge or skills to re-engage. This can be addressed by: (1) increasing stroke specific health literacy by targeted and timely information provision, and (2) improving continuity of care between specialist and generalist services.

Systematic review registration number: PROSPERO 2015:CRD42015026602.

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Conflict of interest statement

Competing Interests: The authors have declared that no competing interests exist.

Figures

Fig 1
Fig 1. Inter-relationships among categories of second order constructs.
Fig 2
Fig 2. PRISMA flow diagram of studies included and excluded at each stage of the review.
Fig 3
Fig 3. From service passivity and perceived marginalisation to service activity and self-management.
3A: Passive patient-caregiver/ service relationship; 3B: active patient-caregiver / service relationship.
See this image and copyright information in PMC

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