mySinusitisCoach: patient empowerment in chronic rhinosinusitis using mobile technology

S F Seys¹, J Bousquet², C Bachert³, W J Fokkens⁴, I Agache⁵, M Bernal-Sprekelsen⁶, I Callebaut⁷, L O Cardel⁸, S Carrie⁹, P Castelnuovo¹⁰, R Cathcart¹¹, J Constantinidis¹², L Cools⁷, M Cornet⁴, G Clement¹³, J C de Sousa¹⁴, T Cox¹⁵, M Doulaptsi¹⁶, P Gevaert³, C Hopkins¹⁷, V Hox¹⁸, T Hummel¹⁹, W Hosemann²⁰, R Jacobs²¹, M Jorissen⁷, B N Landis²², A Leunig²³, V J Lund²⁴, J Mullol²⁵, M Onerci²⁶, S Palkonen²⁷, I Proano²⁷, E Prokopakis¹⁵, D Ryan²⁸, H Riechelmann²⁹, J Saevels³⁰, C Segboer⁴, K Speleman³¹, E A Steinsvik³², P Surda¹⁶, P V Tomazic³³, O Vanderveken³⁴, L Van Gerven⁷, T Van Zele³, B Verhaeghe³⁵, K Vierstraete³⁶, S Vlaminck³¹, J Wilkinson³⁷, S Williams³⁸, B Pugin¹, P W Hellings¹

Affiliations

¹ European Forum for Research and Education in Allergy and Airway Diseases (EUFOREA), Brussels, Belgium.
² Department of Respiratory Disease, University Hospital Arnaud de Villeneuve, Montpellier, France.
³ Upper Airways Research Laboratory, Department of Otorhinolaryngology-Head and Neck Surgery, Ghent University, Belgium.
⁴ Department of Otorhinolaryngology, Academic Medical Center, Amsterdam, The Netherlands.
⁵ Faculty of Medicine, Transylvania University, Brasov, Romania.
⁶ Department of Otorhinolaryngology, Hospital Clinic Universitari, Barcelona, Spain.
⁷ Department of Otorhinolaryngology-Head and Neck Surgery, UZ Leuven, Belgium.
⁸ Division of ENT Diseases, Department of Clinical Science, Intervention and Technology, Karolinska Institutet, Stockholm, Sweden.
⁹ ENT Department, Freeman Hospital, Newcastle upon Tyne, UK.
¹⁰ ENT Department, Ospedale Di Circolo E Fondazione Macchi, Varese, Italy.
¹¹ ENT Department, Cumberland Infirmary, Carlisle, Cumbria, UK.
¹² 2nd Academic ENT department, Aristotle University of Thessaloniki, Papageorgiou General Hospital, Thessaloniki, Greece.
¹³ ENT Department, AZ Damiaan, Oostende, Belgium.
¹⁴ Community Health, Life and Health Sciences Research Institute, School of Health Sciences, Univerity of Minho, Portugal.
¹⁵ ENT Department, Jessa hospital, Hasselt, Belgium.
¹⁶ Department of Otorhinolaryngology, University of Crete School of Medicine, Heraklion, Crete, Greece.
¹⁷ ENT Department, Guys and St Thomas NHS Foundation Trust, London, United Kingdom.
¹⁸ Departement dOtorhinolaryngologie, Cliniques Universitaires Saint-Luc, Belgium.
¹⁹ Smell and Taste Clinic, ENT Department, Technische Universitat Dresden, Dresden, Germany.
²⁰ ENT Department, University of Greifswald, Germany.
²¹ Department of Otorhinolaryngology, Head and Neck Surgery, General Hospital Sint-Blasius, Dendermonde, Belgium.
²² Unite de Rhinologie-Olfactologie, Service dOto-Rhino-Laryngologie et de Chirurgie cervico-faciale, Hopitaux Universitaires de Geneve, Geneve, Suisse.
²³ ENT Department, Ludwig Maximilians University Munich, Germany.
²⁴ UCL and Honorary Consultant ENT Surgeon, UCLH, UK.
²⁵ IDIBAPS, Hospital Clinic, Universitat de Barcelona, CIBERES, Barcelona, Catalonia, Spain.
²⁶ ENT Department, Faculty of Medicine, Hacettepe University, Ankara, Turkey.
²⁷ European Federation of Allergy and Airways Diseases Patients Associations (EFA), Brussels, Belgium.
²⁸ Allergy and Respiratory Research Group, Usher Institute of Population Health Sciences and Informatics, University of Edinburgh, UK.
²⁹ Universitatsklinik fur Hals- Nasen- Ohrenheilkunde Innsbruck, Austria.
³⁰ Association of Pharmacists in Belgium, Brussels, Belgium.
³¹ ENT Department, AZ Sint-Jan, Bruges, Belgium.
³² Department of Otorhinolaryngology, Oslo University Hospital, Rikshospitalet, Oslo, Norway.
³³ Department of General ORL, Head and Neck Surgery, Medical University of Graz, Graz, Austria.
³⁴ ENT Department, University Hospital of Antwerp, Wilrijk, Belgium.
³⁵ ENT Department, Sint-Jozefskliniek, Izegem, Belgium.
³⁶ ENT Department, AZ Groeninge, Kortrijk, Belgium.
³⁷ Pharmaceutical Group of the European Union, Brussels, Belgium.
³⁸ International Primary Care Respiratory Group, Aberdeen, UK.

PMID: 29466477
DOI: 10.4193/Rhin17.253

Review

mySinusitisCoach: patient empowerment in chronic rhinosinusitis using mobile technology

S F Seys et al. Rhinology. 2018.

. 2018 Sep 1;56(3):209-215.

doi: 10.4193/Rhin17.253.

Authors

Affiliations

¹ European Forum for Research and Education in Allergy and Airway Diseases (EUFOREA), Brussels, Belgium.
² Department of Respiratory Disease, University Hospital Arnaud de Villeneuve, Montpellier, France.
³ Upper Airways Research Laboratory, Department of Otorhinolaryngology-Head and Neck Surgery, Ghent University, Belgium.
⁴ Department of Otorhinolaryngology, Academic Medical Center, Amsterdam, The Netherlands.
⁵ Faculty of Medicine, Transylvania University, Brasov, Romania.
⁶ Department of Otorhinolaryngology, Hospital Clinic Universitari, Barcelona, Spain.
⁷ Department of Otorhinolaryngology-Head and Neck Surgery, UZ Leuven, Belgium.
⁸ Division of ENT Diseases, Department of Clinical Science, Intervention and Technology, Karolinska Institutet, Stockholm, Sweden.
⁹ ENT Department, Freeman Hospital, Newcastle upon Tyne, UK.
¹⁰ ENT Department, Ospedale Di Circolo E Fondazione Macchi, Varese, Italy.
¹¹ ENT Department, Cumberland Infirmary, Carlisle, Cumbria, UK.
¹² 2nd Academic ENT department, Aristotle University of Thessaloniki, Papageorgiou General Hospital, Thessaloniki, Greece.
¹³ ENT Department, AZ Damiaan, Oostende, Belgium.
¹⁴ Community Health, Life and Health Sciences Research Institute, School of Health Sciences, Univerity of Minho, Portugal.
¹⁵ ENT Department, Jessa hospital, Hasselt, Belgium.
¹⁶ Department of Otorhinolaryngology, University of Crete School of Medicine, Heraklion, Crete, Greece.
¹⁷ ENT Department, Guys and St Thomas NHS Foundation Trust, London, United Kingdom.
¹⁸ Departement dOtorhinolaryngologie, Cliniques Universitaires Saint-Luc, Belgium.
¹⁹ Smell and Taste Clinic, ENT Department, Technische Universitat Dresden, Dresden, Germany.
²⁰ ENT Department, University of Greifswald, Germany.
²¹ Department of Otorhinolaryngology, Head and Neck Surgery, General Hospital Sint-Blasius, Dendermonde, Belgium.
²² Unite de Rhinologie-Olfactologie, Service dOto-Rhino-Laryngologie et de Chirurgie cervico-faciale, Hopitaux Universitaires de Geneve, Geneve, Suisse.
²³ ENT Department, Ludwig Maximilians University Munich, Germany.
²⁴ UCL and Honorary Consultant ENT Surgeon, UCLH, UK.
²⁵ IDIBAPS, Hospital Clinic, Universitat de Barcelona, CIBERES, Barcelona, Catalonia, Spain.
²⁶ ENT Department, Faculty of Medicine, Hacettepe University, Ankara, Turkey.
²⁷ European Federation of Allergy and Airways Diseases Patients Associations (EFA), Brussels, Belgium.
²⁸ Allergy and Respiratory Research Group, Usher Institute of Population Health Sciences and Informatics, University of Edinburgh, UK.
²⁹ Universitatsklinik fur Hals- Nasen- Ohrenheilkunde Innsbruck, Austria.
³⁰ Association of Pharmacists in Belgium, Brussels, Belgium.
³¹ ENT Department, AZ Sint-Jan, Bruges, Belgium.
³² Department of Otorhinolaryngology, Oslo University Hospital, Rikshospitalet, Oslo, Norway.
³³ Department of General ORL, Head and Neck Surgery, Medical University of Graz, Graz, Austria.
³⁴ ENT Department, University Hospital of Antwerp, Wilrijk, Belgium.
³⁵ ENT Department, Sint-Jozefskliniek, Izegem, Belgium.
³⁶ ENT Department, AZ Groeninge, Kortrijk, Belgium.
³⁷ Pharmaceutical Group of the European Union, Brussels, Belgium.
³⁸ International Primary Care Respiratory Group, Aberdeen, UK.

PMID: 29466477
DOI: 10.4193/Rhin17.253

Abstract

Mobile health technology is emerging to take a prominent position in the management of chronic diseases. These technologies aim at enhancing patient empowerment via education and self-management. To date, of all the different apps available for patients with sinus disease, none were developed by medical experts dealing with chronic rhinosinusitis (CRS). The European Forum for Research and Education in Allergy and Airway diseases (EUFOREA) has undertaken a multi-stakeholder approach for designing, developing and implementing a tool to support CRS patients in monitoring their symptoms and to provide patients with a digital support platform containing reliable medical information about their disease and treatment options. mySinusitisCoach has been developed by medical experts dealing with CRS in close collaboration with patients, primary care physicians and community pharmacists, meeting the needs of both patients and health care providers. From a research perspective, the generation of real life data will help to validate clinical studies, patient stratification and improve understanding of the socio-economic impact of CRS, thereby paving the way for better treatment strategies.

PubMed Disclaimer

Publication types

Actions

MeSH terms

Actions
Actions
Actions
Actions
Actions
Actions
Actions
Actions

LinkOut - more resources

Full Text Sources
- International Rhinologic Society
Other Literature Sources
- scite Smart Citations
Medical
- ClinicalTrials.gov
- MedlinePlus Health Information

Save citation to file

Email citation

Add to Collections

Add to My Bibliography

Your saved search

Create a file for external citation management software

Your RSS Feed

mySinusitisCoach: patient empowerment in chronic rhinosinusitis using mobile technology

Affiliations

mySinusitisCoach: patient empowerment in chronic rhinosinusitis using mobile technology

Authors

Affiliations

Abstract

Publication types

MeSH terms

LinkOut - more resources

Full Text Sources

Other Literature Sources

Medical