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Editorial
. 2018 Feb 9:9:91-95.
doi: 10.2147/PROM.S141630. eCollection 2018.

PCORnet's Collaborative Research Groups

Mark J Pletcher  1   2 , Christopher B Forrest  3 , Thomas W Carton  4
Affiliations
Editorial

PCORnet's Collaborative Research Groups

Mark J Pletcher et al. Patient Relat Outcome Meas. .

Abstract

The Patient-Centered Outcomes Research Institute (PCORI) launched a multi-institutional "network of networks" in 2013 - Patient-Centered Clinical Research Network (PCORnet) - that is designed to conduct clinical research that is faster, less expensive, and more responsive to the information needs of patients and clinicians. To enhance cross-network and cross-institutional collaboration and catalyze the use of PCORnet, PCORI has supported formation of 11 Collaborative Research Groups focusing on specific disease types (e.g., cardiovascular health and cancer) or particular patient populations (e.g., pediatrics and health disparities). PCORnet's Collaborative Research Groups are establishing research priorities within these focus areas, establishing relationships with potential funders, and supporting development of specific research projects that will use PCORnet resources. PCORnet remains a complex, multilevel, and heterogeneous network that is still maturing and building a diverse portfolio of observational and interventional people-centered research; engaging with PCORnet can be daunting, particularly for outside investigators. We believe the Collaborative Research Groups are stimulating interest and helping investigators navigate the complexity, but only time will tell if these efforts will bear fruit in terms of funded multicenter PCORnet projects.

Keywords: PCORI; PCORnet; collaboration; infrastructure; network.

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Conflict of interest statement

Disclosure The authors report no conflicts of interest in this work besides the funding they receive from PCORI for the Collaborative Research Group program.

References

    1. Patient-Centered Outcomes Research Institute. [Accessed November 13, 2017]. Available from: https://www.pcori.org/
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    1. What We Mean By Engagement. [Accessed November 13, 2017]. Available from: https://www.pcori.org/engagement/what-we-mean-engagement.
    1. Fleurence RL, Curtis LH, Califf RM, Platt R, Selby JV, Brown JS. Launching PCORnet, a national patient-centered clinical research network. J Am Med Inform Assoc. 2014;21(4):578–582. - PMC - PubMed
    1. Califf RM, Robb MA, Bindman AB, et al. Transforming evidence generation to support health and health care decisions. N Engl J Med. 2016;375(24):2395–2400. - PubMed

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