Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2018 Jun 1;25(6):759-771.
doi: 10.1093/jamia/ocy006.

Converging and diverging needs between patients and providers who are collecting and using patient-generated health data: an integrative review

Meghan J Reading  1 , Jacqueline A Merrill  1   2
Affiliations

Converging and diverging needs between patients and providers who are collecting and using patient-generated health data: an integrative review

Meghan J Reading et al. J Am Med Inform Assoc. .

Abstract

Objective: This integrative review identifies convergent and divergent areas of need for collecting and using patient-generated health data (PGHD) identified by patients and providers (i.e., physicians, nurses, advanced practice nurses, physician assistants, and dietitians).

Methods: A systematic search of 9 scholarly databases targeted peer-reviewed studies published after 2010 that reported patients' and/or providers' needs for incorporating PGHD in clinical care. The studies were assessed for quality and bias with the Mixed-Methods Appraisal Tool. The results section of each article was coded to themes inductively developed to categorize patient and provider needs. Distinct claims were extracted and areas of convergence and divergence identified.

Results: Eleven studies met inclusion criteria. All had moderate to low risk of bias. Three themes (clinical, logistic, and technological needs), and 13 subthemes emerged. Forty-eight claims were extracted. Four were divergent and twenty were convergent. The remainder was discussed by only patients or only providers.

Conclusion: As momentum gains for integrating PGHD into clinical care, this analysis of primary source data is critical to understanding the requirements of the 2 groups directly involved in collection and use of PGHD.

PubMed Disclaimer

Figures

Figure 1.
Figure 1.
Flow diagram of study selection process.
See this image and copyright information in PMC

References

    1. CMS. Medicare Program; CY 2018 Updates to the Quality Payment Program; and Quality Payment Program: Extreme and Uncontrollable Circumstance Policy for the Transition Year. 2017. Baltimore, MD. - PubMed
    1. CMS. CY 2018 Revisions to Payment Policies under the Physician Fee Schedule and Other Revisions to Part B. 2017. Baltimore, MD.
    1. Wood WA, Bennett AV, Basch E. Emerging uses of patient generated health data in clinical research. Mol Oncol 2015; 95:1018–1024. - PMC - PubMed
    1. Howie L, Hirsch B, Locklear T, Abernethy AP. Assessing the value of patient-generated data to comparative effectiveness research. Health Aff (Millwood) 2014; 337: 1220–1228. - PubMed
    1. Lavallee DC, Chenok KE, Love RM et al. , Incorporating patient-reported outcomes into health care to engage patients and enhance care. Health Aff (Millwood) 2016; 354:575–582. - PubMed

Publication types