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. 2018 Feb 26;7(2):e68.
doi: 10.2196/resprot.8054.

Self-Management and Self-Efficacy in Patients With Acute Spinal Cord Injuries: Protocol for a Longitudinal Cohort Study

Tijn van Diemen  1   2   3 , Eline Wm Scholten  2 , Ilse Jw van Nes  1 ; SELF-SCI Group; Jan Hb Geertzen  3 , Marcel Wm Post  2   3
Affiliations

Self-Management and Self-Efficacy in Patients With Acute Spinal Cord Injuries: Protocol for a Longitudinal Cohort Study

Tijn van Diemen et al. JMIR Res Protoc. .

Abstract

Background: People with recently acquired spinal cord injury (SCI) experience changes in physical, social and psychological aspects of their lives. In the last decades, attention has grown for aspects of self-management and self-efficacy in SCI research. However, we still do not know what the self-management and self-efficacy outcomes of first rehabilitation are and whether utilizing these skills may prevent secondary health conditions (SHCs) and increase participation and psychological adjustment early after SCI.

Objective: To describe the course and determinants of self-management and self-efficacy during and after first SCI rehabilitation; and to determine theory-based associations between self-management and self-efficacy with SHCs, participation and psychological adjustment.

Methods: Multicenter prospective longitudinal cohort study. All people with a newly acquired SCI admitted to one of the 8 specialized SCI rehabilitation centers in the Netherlands will be considered for inclusion in this study. Main assessments will take place during the first and last week of admission and 3, 6 and 12 months after discharge. The target sample is 250 participants. The primary outcomes are self-management (knowledge and execution of self-care) and self-efficacy (confidence in the ability to manage the consequences of SCI and of self-care). Secondary outcome measures are SHCs, participation and psychological adjustment to SCI.

Results: The first results with the complete set of data are expected in June 2019.

Conclusions: This protocol describes the SELF-SCI cohort study investigating self-management and self-efficacy of initial inpatient SCI rehabilitation. Second, associations will be investigated with SHCs, participation and psychological adjustment early after onset of SCI, until 1 year after discharge. The results will be used to test theories about motivation to perform health-promoting behaviors and adjustment to SCI.

Keywords: complications; rehabilitation; self-care; self-efficacy; social participation; spinal cord injuries.

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Conflict of interest statement

Conflicts of Interest: None declared.

Figures

Figure 1
Figure 1
Scheme of theory of planned behavior.
Figure 2
Figure 2
Scheme of spinal cord injury adjustment model.
See this image and copyright information in PMC

References

    1. Chhabra H. editor. ISCoS text book on comprehensive management of spinal cord injuries. New Delhi: Wolters Kluwer; 2015.
    1. van Asbeck FWA, editor. Textbook of spinal cord injury rehabilitation, 2ND ed. TBD: Houten; 2007.
    1. Nijendijk JHB, Post MWM, van Asbeck FWA. Epidemiology of traumatic spinal cord injuries in The Netherlands in 2010. Spinal Cord. 2014 Apr;52(4):258–63. doi: 10.1038/sc.2013.180. - DOI - PubMed
    1. Guilcher SJT, Craven BC, Lemieux-Charles L, Casciaro T, McColl MA, Jaglal SB. Secondary health conditions and spinal cord injury: an uphill battle in the journey of care. Disabil Rehabil. 2013 Jun;35(11):894–906. doi: 10.3109/09638288.2012.721048. http://europepmc.org/abstract/MED/23020250 - DOI - PMC - PubMed
    1. Jensen MP, Truitt AR, Schomer KG, Yorkston KM, Baylor C, Molton IR. Frequency and age effects of secondary health conditions in individuals with spinal cord injury: a scoping review. Spinal Cord. 2013 Dec;51(12):882–92. doi: 10.1038/sc.2013.112. - DOI - PubMed

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