Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
Review
. 2018 Spring;81(1):28-40.
doi: 10.1080/00332747.2017.1324697. Epub 2018 Mar 1.

Supported Decision Making in Serious Mental Illness

Review

Supported Decision Making in Serious Mental Illness

Dilip V Jeste et al. Psychiatry. 2018 Spring.

Abstract

Objective: Making decisions is central to the exercise of control over one's well-being. Many individuals with serious mental illness (SMI) experience limitations in their decision-making capacity. These individuals have often been placed under legal guardianship and substitute decision makers have been appointed to make decisions on their behalf. More recently, supported decision making (SDM) has emerged as a possible alternative in some cases. SDM involves recruitment of trusted supports to enhance an individual's capacity in the decision-making process, enabling him or her to retain autonomy in life decisions. This overview examines issues associated with decision-making capacity in SMI, frameworks of substitute decision making and SDM, and emerging empirical research on SDM.

Method: This is an overview of the medical and legal literature on decision making capacity and supported decision making for persons with SMI.

Results: Many but not all individuals with SMI exhibit decrements in decision-making capacity and skill, in part due to cognitive impairment. There are no published data on rates of substitute decision making/guardianship or SDM for SMI. Only three empirical studies have explored SDM in this population. These studies suggest that SDM is viewed as an acceptable and potentially superior alternative to substitute decision making for patients and their caretakers.

Conclusions: SDM is a promising alternative to substitute decision making for persons with SMI. Further empirical research is needed to clarify candidates for SDM, decisions in need of support, selection of supporters, guidelines for the SDM process, integration of SDM with emerging technological platforms, and outcomes of SDM. Recommendations for implementation of and research on SDM for SMI are provided.

PubMed Disclaimer

Conflict of interest statement

The Authors have declared that there are no conflicts of interest in relation to the subject of this report.

References

    1. Administration for Community Living. U.S. Department of Health & Human Services., Funding Opportunity HHS-2014-ACL-AIDD-DM-0084, Supported Decision Making, available at http://www.grants.gov/web/grants/view-opportunity.html?oppId=256168(last visited Nov. 15, 2016).
    1. American Bar Association, Beyond Guardianship: Supported Decision-Making by Individuals with Intellectual Disabilities: A Short Summary from the 2012 National Roundtable, available at: http://www.americanbar.org/content/dam/aba/administrative/mental_physica...
    1. Amnesty International (2009). Decision-making capacity in mental health: Exploratory research into the views of people with personal experience. Ireland: Amensty International Ireland.
    1. Appelbaum PS, & Grisso T (1995). The MacArthur Treatment Competence Study. Law and Human Behavior, 19(2), 105–126. - PubMed
    1. Bach M, & Kerzner L (2010). A new paradigm for protecting autonomy and the right to legal capacity. Law Commission of Ontario. Retrieved from http://www.lco-cdo.org.

Publication types