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Multicenter Study
. 2018 Apr;38(Suppl 1):243-250.
doi: 10.1007/s00296-018-3955-y. Epub 2018 Apr 7.

The Hungarian version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)

Ilonka Orbán  1 , Tamás Constantin  2 , Beáta Dérfalvi  2 , Krisztina Sevcic  3 , Diána Garan  2 , Rita Káposzta  4 , Gyula Poór  3 , Emese Kiss  3 , Andrea Ponyi  2 , Alessandro Consolaro  5   6 , Francesca Bovis  5 , Nicolino Ruperto  7 ; Paediatric Rheumatology International Trials Organisation (PRINTO)
Affiliations
Multicenter Study

The Hungarian version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)

Ilonka Orbán et al. Rheumatol Int. 2018 Apr.

Abstract

The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Hungarian language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 206 JIA patients (3.9% systemic, 41.3% oligoarticular, 28.2% RF-negative polyarthritis, 26.6% other categories) and 90 healthy children, were enrolled in two centres. The JAMAR components discriminated healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Hungarian version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.

Keywords: Disease status; Functional ability; Health-related quality of life; JAMAR; Juvenile idiopathic arthritis.

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Conflict of interest statement

Conflict of interest

Dr. Ponyi, Dr. Kiss, Dr. Orbán, Dr. Constantin, Dr. Derfalvi, Dr. Sevcic and Dr. Poór report funding support from Istituto Giannina Gaslini, Genoa, Italy, for the translation and data collection performed at their sites within the EPOCA project. Dr. Ruperto has received grants from BMS, Hoffman-La Roche, Janssen, Novartis, Pfizer, Sobi, during the conduct of the study and personal fees and speaker honorarium from Abbvie, Ablynx, Amgen, AstraZeneca, Baxalta Biosimilars, Biogen Idec, Boehringer, Bristol Myers Squibb, Celgene, Eli-Lilly, EMD Serono, Gilead Sciences, Janssen, Medimmune, Novartis, Pfizer, Rpharm, Roche, Sanofi, Servier and Takeda. Dr. Consolaro, Dr. Bovis, Dr. Garan and Dr. Kaposzta have nothing to disclose.

Ethical approval

All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional and/or national research committee and with the 1964 Helsinki Declaration and its later amendments or comparable ethical standards.

Informed consent

Informed consent was obtained from all individual participants included in the study as per the requirement of the local ethical committee.

References

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