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. 2018;16(3):545-572.
doi: 10.1007/s11469-018-9904-x. Epub 2018 Apr 18.

Protection of Privacy of Information Rights among Young Adults with Developmental Disabilities

Nazilla Khanlou  1 , Anne Mantini  1 , Attia Khan  1 , Katie Degendorfer  2 , Masood Zangeneh  3
Affiliations

Protection of Privacy of Information Rights among Young Adults with Developmental Disabilities

Nazilla Khanlou et al. Int J Ment Health Addict. 2018.

Abstract

Protection of privacy of information for young adults with developmental disabilities and their families is essential to promote quality of life, well-being, empowerment, and inclusion. Despite this, the young adults' information privacy rights are increasingly at risk. This paper provides a scoping review, applying Arksey and O'Malley's (2005) approach, of all published peer-reviewed journal articles and gray literature to examine the barriers and facilitators in utilization of legislation that protects the collection, use, disclosure, and access of personal information in Canada. The scoping review process was further expanded with a rigorous reliability method and applied a socio-ecological framework to the final 47 studies. National and international policy and legislation (macro level), organization-based factors (meso), young adults and community interactions (exo), and individual disability related factors (micro) are examined. The review identifies the barriers and highlights the importance of facilitators for acting on personal privacy rights.

Keywords: Canada; Confidentiality; Information privacy rights; PHIPA; PIPEDA; Personal information protection.

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Conflict of interest statement

Compliance with Ethical StandardsThe authors declare that they have no conflict of interest.

Figures

Fig. 1
Fig. 1
Information privacy rights PRISMA diagram
Fig. 2
Fig. 2
Conceptual framework: determinants of privacy of personal information rights for YADD
See this image and copyright information in PMC

References

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