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. 2018 Aug:85:21-27.
doi: 10.1016/j.yebeh.2018.04.014. Epub 2018 Jun 13.

Epilepsy misconceptions and stigma reduction interventions in sub-Saharan Africa, a systematic review

Mark Kaddumukasa  1 , Martin N Kaddumukasa  2 , William Buwembo  3 , Ian G Munabi  4 , Carol Blixen  5 , Samden Lhatoo  6 , Nelson Sewankambo  2 , Elly Katabira  2 , Martha Sajatovic  7
Affiliations

Epilepsy misconceptions and stigma reduction interventions in sub-Saharan Africa, a systematic review

Mark Kaddumukasa et al. Epilepsy Behav. 2018 Aug.

Abstract

Objective: This systematic review identified papers that described epilepsy misconceptions or stigma in sub-Saharan Africa (SSA) and research interventions focused on reducing these misconceptions.

Materials and methods: Publications in the English language from January 2000 to October 2017 that described original research conducted in SSA on misconceptions about epilepsy were utilized.

Results: Twenty-three publications were identified. Studies were from Nigeria (N = 4), Cameroon (N = 4), Uganda (N = 3), Zambia (N = 2), Ethiopia (N = 2), Tanzania (N = 2), Kenya (N = 2), Ghana, Zimbabwe, Benin, and Mali (N = 1 each). The studies included assessments of misconceptions among healthcare providers and medical students (N = 3), high school students (N = 2), teachers (N = 2), the general public (N = 10), people with epilepsy (N = 7), and traditional healers (N = 1). Only two studies had stigma-focused interventions. Majority of the studies reported limitations to socialization with people with epilepsy and various beliefs associated with epilepsy.

Conclusions: Epilepsy misconceptions, stigmatizing cultural beliefs, and perceptions were widely prevalent in SSA, and there are a few studies targeting epilepsy stigma. Existing stigma-reduction educational approaches may be impractical for general population implementation. Scalable approaches to reduce stigma are urgently needed within SSA.

Keywords: Attitudes; Epilepsy; Misconceptions; Seizures; Stigma.

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References

    1. Jacoby A, Snape D, Baker GA. Epilepsy and social identity: the stigma of a chronic neurological disorder. Lancet Neurol. 2005;4(3):171–8. - PubMed
    1. Baker GA. The psychosocial burden of epilepsy. Epilepsia. 2002;43 Suppl 6:26–30. - PubMed
    1. Morrell MJ. Stigma and epilepsy. Epilepsy Behav. 2002;3(6S2):21–5. - PubMed
    1. McLin WM, de Boer HM. Public perceptions about epilepsy. Epilepsia. 1995;36(10):957–9. - PubMed
    1. Global Campaign against Epilepsy - World Health Organization. Geneva; 1997.

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