Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2018 Jul 1;7(7):giy076.
doi: 10.1093/gigascience/giy076.

Where is the human in the data? A guide to ethical data use

Angela Ballantyne  1
Affiliations

Where is the human in the data? A guide to ethical data use

Angela Ballantyne. Gigascience. .

Abstract

Being asked to write about the ethics of big data is a bit like being asked to write about the ethics of life. Big data is now integral to so many aspects of our daily lives-communication, social interaction, medicine, access to government services, shopping, and navigation. Given this diversity, there is no one-size-fits-all framework for how to ethically manage your data. With that in mind, I present seven ethical values for responsible data use.

PubMed Disclaimer

Figures

Figure 1:
Figure 1:
An infographic summarizing the ethical values.
See this image and copyright information in PMC

References

    1. Roy M. Data anonymization techniques less reliable in era of big data. TechTarget. 2017. https://searchcompliance.techtarget.com/feature/High-dimensional-info-co... Accessed 10 May 2018.
    1. Montjoye AJ, Radaelli L, Singh VK, et al. . Unique in the shopping mall: on the reidentifiability of credit card metadata. Science. 2015;347:536–9. - PubMed
    1. Kaye J, Whitley EA, Lund D, et al. . Dynamic consent: a patient interface for twenty-first century research networks. Eur J Hum Genet. 2015;23(2):141–6. - PMC - PubMed
    1. Ploug T, Holm S. Meta Consent - a flexible solution to the problem of secondary use of health data. Bioethics. 2016;30(9):721–32. - PMC - PubMed
    1. Ballantyne A, Schaefer GO. Consent and the ethical duty to participate in health data research. J Med Ethics. 2018;44 (6):392–396. - PubMed

Publication types

LinkOut - more resources