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. 2018 Jul 6;13(7):e0199986.
doi: 10.1371/journal.pone.0199986. eCollection 2018.

Adequacy of care management of patients with polyhandicap in the French health system: A study of 782 patients

Marie-Christine Rousseau  1   2 , Thierry Billette de Villemeur  3   4   5 , Sherezad Khaldi-Cherif  6 , Catherine Brisse  7 , Agnès Felce  8 , Karine Baumstarck  2 , Pascal Auquier  2 ; French Polyhandicap Group
Affiliations

Adequacy of care management of patients with polyhandicap in the French health system: A study of 782 patients

Marie-Christine Rousseau et al. PLoS One. .

Abstract

Background: The aims of this study were 1) to describe the health profiles and care management of polyhandicapped patients according to 2 modalities, specialized rehabilitation centers (SRC) and residential facilities (RF), and 2) to estimate the adequacy of care management of these patients.

Methods: This was an 18-month cross-sectional study including patients with a combination of severe motor deficiency and profound intellectual impairment. The patients were from 4 SRC and 9 RF. The following data were collected: sociodemographics, health status, care management, and adequacy of care management.

Results: A total of 782 patients were included: 410 (52%) were cared for in SRC and 372 (48%) in RF. Global objective adequacy (health severity and age category) was higher for patients cared for in SRC compared with patients cared for in RF (57 vs. 44%, p< = 10-3). Global subjective adequacy (self-perception of the referring physician and request of change in structure) was higher for patients cared for in SRC in comparison with patients cared for in RF (98 vs. 92%, p< = 10-3).

Conclusions: This study provides key elements of adequacy of care management modalities for polyhandicapped patients in France.

Trial registration: ClinicalTrials.gov NCT02400528.

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Conflict of interest statement

The authors have declared that no competing interests exist.

Figures

Fig 1
Fig 1. Details of inclusion criteria and data collection.
Fig 2
Fig 2. Adequacy of care management.
a) Objective adequacy of care management. b) Subjective adequacy of care management.
See this image and copyright information in PMC

References

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