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. 2018 Jul 13;7(7):CD007987.
doi: 10.1002/14651858.CD007987.pub3.

Parent training interventions for parents with intellectual disability

Esther Coren  1 , Kerry Ramsbotham, Manfred Gschwandtner
Affiliations

Parent training interventions for parents with intellectual disability

Esther Coren et al. Cochrane Database Syst Rev. .

Abstract

Background: Research suggests that the number of intellectually disabled people with children is increasing. Intellectual disabilities do not inevitably cause parenting difficulties, but it may impact on an individual's capacity to parent a child effectively. Children of parents with intellectual disabilities may be at increased risk of neglectful care, which could lead to health, developmental and behavioural problems, or increased risk of intellectual disability. Compared with other parents, those with intellectual disabilities are more likely to be involved in care proceedings.

Objectives: To assess the effectiveness of parent training interventions for parents with intellectual disabilities designed to support parenting, parent-child relations, safe parenting or family environments, or to develop parenting skills.

Search methods: In July 2017, we searched CENTRAL, Ovid MEDLINE, Embase, CINAHL and six other databases as well as two trials registers. We also searched reference lists of included studies and contacted experts in the field to identify additional ongoing and unpublished studies.

Selection criteria: Randomised controlled trials (RCTs) and quasi-RCTs comparing parent training interventions for parents with intellectual disabilities with treatment as usual or a control group.

Data collection and analysis: We used standardised Cochrane methods.

Main results: As of July 2017, we identified four trials with 192 participants that met the review inclusion criteria. Participating parents were mostly mothers (seven fathers were included in two studies), and children's ages ranged from one month to six years and five months.One study was conducted in Australia, one in Canada, one in the Netherlands, and one in the USA. Each studied a different intervention and considered different outcomes. Three interventions were delivered at home, and one in a community venue (e.g. a church). Interventions varied in duration from seven weeks to 12 months. They included a range of practical childcare skills, home safety and developing parents' ability to respond sensitively to their children. Parents in the comparison groups included in the review received treatment as usual and most of these received the index intervention after the study was complete.One study was funded by the Ontario Mental Health Foundation and the Ontario Ministry of Community and Social Services Research Grants Program; one by the Alabama Development Disabilities Council; one by the Best Practice Parenting Education Initiative of the Commonwealth Department of Family and Community Services and the New South Wales Aging and Disability Department; and one by ZonMw, The Netherlands Organisation for Health Research and Development.It was not possible for us to conduct a meta-analysis. The GRADE quality assessment varied from very low to moderate across the studies.Primary outcomesNo study reported on the 'attainment of specific parenting skill targets'.'Safe home practices' and 'understanding of child health': one study (30 parents, very low-quality evidence) reported some improvements in parents' knowledge of life-threatening emergencies, ability to recognise dangers, and identify precautions, in favour of the intervention group. It also found limited, very low-quality evidence that parent training improved parents' ability to understand child health, implement precautions, use medicines safely, recognise child illness and symptoms, and seek medical advice (i.e. visit the doctor). Another study (22 mothers, very low-quality evidence) reported improved attainment of skills related to childcare and safety, in favour of the intervention group.Secondary outcomes'Parent-child interaction': one study (40 mothers, very low-quality evidence) reported improved maternal-child interaction following parent training at 12 months follow-up. Another study (83 mothers, 2 fathers, moderate-quality evidence) reported that inclusion in the intervention group led to a steeper decline in parenting stress related to the child compared to the control group.'Parents' retention of child': one study (22 participants; very low-quality evidence) reported that before joining the programme nine of 11 (82%) families with a previous child had had the child removed from their care by child protection authorities due to maternal maltreatment, compared with only four of 22 (19%) families after participating in the programme (only one of these four mothers had also had a previous child removed).No study reported data on: 'return to independent care of child' or 'lifting of child-related court order'.

Authors' conclusions: There is some very low-quality evidence that some parents, mainly mothers, with intellectual disabilities are able to provide adequate parenting if they are given appropriate training and support to learn the parenting skills they need. However, there are few studies exploring how interventions might work, for whom and in what circumstances. In particular, there have been few studies that include fathers with intellectual disabilities, or that explore the views of parents themselves.There is a need for larger RCTs of parenting interventions, with longer follow-up, before conclusions can be drawn about the effectiveness of parent training for this group of parents.

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Conflict of interest statement

Esther Coren is an Editor with Cochrane Developmental, Psychosocial and Learning Problems Group. Kerry Ramsbotham ‐ none known. Manfred Gschwandtner ‐ none known.

Figures

1
1
Figure 1: Study flow diagram
2
2
Risk of bias summary: review authors' judgements about each risk of bias item for each included study.
1.1
1.1. Analysis
Comparison 1 Parent training compared to treatment as usual, Outcome 1 Recognising dangers.
1.2
1.2. Analysis
Comparison 1 Parent training compared to treatment as usual, Outcome 2 Identifying precautions.
1.3
1.3. Analysis
Comparison 1 Parent training compared to treatment as usual, Outcome 3 Home precautions.
1.4
1.4. Analysis
Comparison 1 Parent training compared to treatment as usual, Outcome 4 Child health comprehension.
1.5
1.5. Analysis
Comparison 1 Parent training compared to treatment as usual, Outcome 5 Symptom recognition.
1.6
1.6. Analysis
Comparison 1 Parent training compared to treatment as usual, Outcome 6 Life‐threatening emergency.
1.7
1.7. Analysis
Comparison 1 Parent training compared to treatment as usual, Outcome 7 Visiting the doctor.
1.8
1.8. Analysis
Comparison 1 Parent training compared to treatment as usual, Outcome 8 Using medicines.
2.1
2.1. Analysis
Comparison 2 Video‐feedback compared to treatment as usual, Outcome 1 Parenting stress: child domain.
2.2
2.2. Analysis
Comparison 2 Video‐feedback compared to treatment as usual, Outcome 2 Parenting stress: parent domain.
2.3
2.3. Analysis
Comparison 2 Video‐feedback compared to treatment as usual, Outcome 3 Parenting stress: total.
See this image and copyright information in PMC

Update of

Comment in

References

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