Pediatric rheumatology: addressing the transition to adult-orientated health care
- PMID: 30013406
- PMCID: PMC6037274
- DOI: 10.2147/OARRR.S138370
Pediatric rheumatology: addressing the transition to adult-orientated health care
Abstract
The transition from pediatric to adult health care is often a challenging process due to multiple interwoven complexities, especially for children with chronic medical conditions. Health care transition (HCT) is a process of moving from a pediatric to an adult model of health care with or without a transfer to a new clinician. This paper focuses on what is known about HCT for youth and young adults (Y/YA) with rheumatic diseases within a larger context of HCT recommendations. HCT barriers for youth, families, and providers and current evidence for a structured HCT processes are reviewed. Practical advice is offered on how to approach transition for Y/YA, what tools are available to assist in a successful transition process, and what are the areas of future research that are needed to improve the HCT evidence base.
Keywords: health care transition; pediatric rheumatology; special health care needs; transition; transition readiness assessment.
Conflict of interest statement
Disclosure The authors report no conflicts of interest in this work.
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References
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- The National Alliance to Advance Adolescent Health; 2014–2018. [Accessed February 21, 2018]. Got Transition [homepage on the Internet] Available from: www.gottransition.org.
-
- Van Cleave J, Gortmaker SL, Perrin JM. Dynamics of obesity and chronic health conditions among children and youth. JAMA. 2010;303(7):623–630. - PubMed
-
- Gortmaker SL, Sappenfield W. Chronic childhood disorders: prevalence and impact. Pediatr Clin North Am. 1984;31(1):3–18. - PubMed
-
- U.S. Department of Health and Human Services, Health Resources and Services Administration Maternal and Child Health Bureau. Frequently asked questions: 2016 National Survey of Children’s Health. [Accessed May 2, 2018]. Available from: https://mchb.hrsa.gov/data/national-surveys/data-user.
-
- Shaw KL, Southwood TR, McDonagh JE. British Paediatric Rheumatology Group User perspectives of transitional care for adolescents with juvenile idiopathic arthritis. Rheumatology (Oxford) 2004;43(6):770–778. - PubMed
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